Thursday, January 28, 2010

Fun Run 2010 - Keep the date!

Hello fellow racers toward a cure!

The BeatSarcoma Fun Run 2010 is ON! It will be held on April 25, in Golden Gate Park, in San Francisco. There will be a 1K, a 5K and a 10K course.

More details to follow soon! Any question, please email funrun at beatsarcoma dot org.

If you want to keep memories of last year's run, you can get the BeatSarcoma Fun Run calendar by clicking here! It's good training :-)

We look forward to seeing you all there!

Friday, January 22, 2010

Join the BeatSarcoma Dance Marathon in Austin this weekend!!!!

We are a group of Anderson High school seniors who have partnered with the charity BeatSarcoma to create a fun event that can benefit sarcoma research: a Dance Marathon. BeatSarcoma is a non profit organization completely devoted to raising awareness of sarcoma cancer and support for research. Sarcoma is one of the lesser funded cancers for research. All donated funds you give will go directly to research. This marathon is BeatSarcoma’s FIRST Texas fundraiser. For more information on BeatSarcoma and our mission please see Mission page. We are devoted to BeatSarcoma’s mission and want you to have a great time!

Now if you have never been to a dance marathon, there is just one main thing you must remember-

Dance Dance Dance! The last team on the dance floor just might win a prize!

Dinner is included!!!


Come help us beat sarcoma AND show off your moves! So let’s dance!



Sunday, January 17, 2010

BeatSarcoma makes a $30,000 research gift to Stanford Cancer Center to support Sarcoma Research


December 2009
After a very successful 2009, Nathalie Criou, President and Nathan Bossett, CFO, of BeatSarcoma presented Dr. Amreen Husain, associate professor of Gynecologic Oncology at Stanford University a $30,000 research gift to further her efforts around sarcoma research.

'We are pleased to contribute to local research institutions and help stimulate professional interest and research around sarcoma-related problems. Independent and fresh ideas are critical to successful research outcomes' says Criou.
The current knowledge of sarcoma is so scarce that any discovery is a home run - and represents a huge improvement over the current knowledge base.
Dr. Amreen Husain notes:
'The sarcoma team at Stanford Cancer Center thanks BeatSarcoma for its continued support and applauds its efforts to raise public awareness of this challenging disease.

Thursday, December 31, 2009

2010 Calendars for sale!

BeatSarcoma, Fun Run and Sarcoma Cup calendars are ready for sale on the BeatSarcoma online store.




100% of the proceeds from these sales will go to BeatSarcoma.

Saturday, September 5, 2009

Sarcoma Cup 2009 Shirts for Sale

You can still buy Sarcoma Cup 2009 Shirts online on the BeatSarcoma store

Wednesday, September 2, 2009

Sarcoma Cup 2009 Photos













Tuesday, August 25, 2009

Initial Sarcoma Cup Photos Posted

More to come over the next few days - check back regularly for updates!

Wednesday, August 12, 2009

Patient Education Program - August 12th at 6PM PST

A Team Approach for Treating Sarcoma in Children and Adults that will be posted on August 12th at 6:00pm PST. Sponsored by Seattle Cancer Care Alliance, you will hear more about the importance of a multidisciplinary team and common overlaps between treating children and adults with sarcoma. With Dr. Chappie Conrad

To hear this program, along with many other programs, visit our website at www.patientpower.info. All programs are hosted by 13-year leukemia survivor, and founder of Patient Power, Andrew Schorr.

Patient Power also provides such programs 'on demand' for the benefit of patients.


Tuesday, July 14, 2009

Donate $1 to the Sarcoma Cup - send $5 to Sarcoma Research

Give $1 to the Sarcoma Cup - and the energy of our volunteers will strive to transform it into $5 for sarcoma research! The Sarcoma Cup is a multiplier of your generosity!!!



Source: www.causes.com
Please enter the four numbers printed in black ink above the embossed account number on the front of your American Express card.

Monday, July 13, 2009

Please Help BeatSarcoma By Writing a Review for the 'Cancer Fighters Award'

Dear fellow racer toward a cure,

Thank you so much for all the help you have given BeatSarcoma in the past couple of years - we are off to a great start and are super excited about the future. We are getting ready for the Sarcoma Cup 2009 - http://www.beatsarcoma.org/Sarcoma_Cup.html -

It would mean a lot to us if you can help us gain visibility in the nonprofit community by writing a small review: www.greatnonprofits.org/reviews/beatsarcoma. The deadline for this is July 31st

This could be a great tool for volunteers who may consider working with us in the future, donors and sponsors who will consider how responsibly we have treated the money and resources they entrusted us with - as well as research institutions who may approach us in the future with promising projects.

For some of you, this is a reminder - feel free to circulate this among anyone who has come to know our organization. Full context below.

On behalf of our entire organization, I thank you.

Nat Criou
President and Founder
BeatSarcoma Inc.
www.beatsarcoma.org

---------- Forwarded message ----------


gnp_logo.gif

cancer_logo.JPG

It's been a whole week since the launch of the 2009 Cancer Fighters Awards. Check out your reviews, if any, at www.greatnonprofits.org/reviews/beatsarcoma.

If you don’t yet have any reviews, there is still time to take advantage of this completely FREE opportunity! (See which cancer fighting nonprofits are in the lead right now at www.greatnonprofits.org/cancer.)

Make your work visible to potential supporters and donors. Ask your volunteers, clients, donors, and board members to post reviews about their experiences with you!

Whether you are a local organization or a national one, you can gain visibility by participating in the 2009 Cancer Fighters Awards. This opportunity is completely FREE of charge.

The nonprofits with the most positive reviews within their size category – small (less than $250K in budget), medium ($250K – $1M) or large (more than $1M) – or their geographic region, posted by July 31, 2009 will be featured on GreatNonprofits, Planet Cancer, AND on Guidestar.org, the premier site for philanthropic research. All reviews will also appear on your GuideStar nonprofit report.

You can also later use these reviews in your marketing, fundraising, and brochures!

This is an opportunity for you to engage your stakeholders – clients, volunteers, board members, donors and others. They can share their experiences with one another and the larger public.

And individuals who participate have a chance to win great wellness prizes such as a free copy of "Everything Changes: The Insider's Guide to Cancer in Your 20s and 30s" by Kairol Rosenthal, free milk for a year from Organic Valley Farms, delicious baked goods from Dancing Deer Baking Co., spa packages from Osmosis Day Spa and Sanctuary, hotel stays from Joie de Vivre Hotels, and more!

Gain visibility and take this opportunity to engage your community.

Best,

Perla Ni
CEO
GreatNonprofits
www.greatnonprofits.org

Wednesday, July 1, 2009

Sarcoma Cup 2009 Registration has opened!

Fellow Sailors,

The Richmond Yacht Club and BeatSarcoma would like to invite you to the 2009 Sarcoma Cup, on August 22 and 23. There will be some great sailing and some great dockside activities.

What a great value for only $1.25/ft (that's $31.25 for 25 footer, or $46.25 for a 37 footer)

  • Sailing World Magazine and other goodies in your skipper packet
  • One Design, PHRF and Cruising Division with mark racing on Saturday and long distance racing 'the island of hope' on Sunday
  • Free Wine Bar - and good ones! and free gourmet coffee (and pastries on Saturday!)
  • Free Massage
  • Live Jazz Band on the dock and Live Rock Band in the evening
  • High Value Sponsored Prizes - the winner gets a FREE HAUL OUT - here is the full list of awards

AND, win more goodies at the Raffle. Prizes include Garmin GPS 75, Sony XR3500-II car stereo, Painting, a Logitech Webcam and much more!

AND, participate in our silent auction. Items include high value sailing items, Painting, restaurant gift certificates, premium wine, home cleaning services, personalized stationary, art glass and more!

It's not all! We will be holding a RUMMAGE SALE - get great deals on sailing parts and gear or bring yours to donate! It's all tax deductible.
YOU CAN REGISTER ONLINE NOW

100% of the proceeds from the event will go to sarcoma research. Last year's event raised over $18,500. With your help, we can double that. And all you have to do is HAVE FUN!

Mark Lowry, Sarcoma Cup Regatta Chair & Nathalie Criou, BeatSarcoma President

Monday, June 29, 2009

Terry Fox - Osteosarcoma Patient and Canada Legend







Terry Fox died from osteosarcoma at age 22 - and according to Wikipedia, in 2004, Fox was vote 2nd place on the The Greatest Canadian.

John Brennan - "The Never Say Die Kid"

Courtesy of Nike film and video team





John died of osteosarcoma at age 21, a few years ago. Like a lot of sarcoma patients, he was an active athletic young adult.

Wednesday, June 24, 2009

BeatSarcoma is looking for volunteers for the Sarcoma Cup - August 22 and/or 23rd 2009

Event details are available at http://www.beatsarcoma.org/Sarcoma_Cup.html

If you are interested, please fill out this form:


Monday, May 11, 2009

BeatSarcoma launches an online store! BeatSarcoma lance une boutique en ligne!


BeatSarcoma

BeatSarcoma lance une boutique en ligne! Achetez des chemises, T-shirts, casquettes, auto-collants, puzzles, tasses, sacs, etc...et aidez la recherche contre le sarcome!


BeatSarcoma

BeatSarcoma Launches an online store. You can buy shirts, sweaters, caps, past event gear, Elise gear, pet bowls, magnets, stickers, puzzles, playing cards, cards, mugs, bags - and do good!



Friday, May 8, 2009

BeatSarcoma has launched a Facebook Page


Help us build awareness!

Wednesday, May 6, 2009

Privacy Policy Update

We have updated our Privacy Policy to document our use of Google Analytics as our web analytics solution

You can access the English version ou en Francais - and do not hesitate to contact us should you have any questions about it (info [at] beatsarcoma [dot] org)

Saturday, April 4, 2009

BeatSarcoma Fun Run 2009 Photos

The first half of the photos from the Fun Run, in Golden Gate Park, San Francisco are available online: here

Wednesday, April 1, 2009

BeatSarcoma Fun Run 2009 results posted!


Thank you everyone for making our second Fun Run a great success. The weather was fabulous, the skateboarders kind enough to add music and our volunteers were all smiles. 

We are still finalizing the accounting but so far, it looks like the event has raised over $9,000!




Monday, March 23, 2009

The Examiner talks about the BeatSarcoma Fun Run

Personal Best: Running for life and sarcoma

By David Liepman
Special to The Examiner 3/22/09

SAN FRANCISCO – After being rammed by an 80-ton sperm whale, Nathalie Criou’s boat had capsized.

Criou and her crew were delivering a sailboat from Hawaii to San Francisco in the summer of 2006 when the boat sank. Adrift for a day on a life raft in shark-infested waters, Criou had no idea that this experience would prepare her for an even greater challenge. Read More...


Wednesday, March 18, 2009

March 22nd: 10% off at Sports Basement - benefiting BeatSarcoma Fun Run 2009

When: March 22 – 11:30 AM until 2:30 PM

Where: Sports Basement, 1590 Bryant St, San Francisco, CA, United States

Sponsored By: BeatSarcoma

 

BeatSarcoma is glad to invite you to our:

Kick off party for BeatSarcoma Fun Run

On Sunday March 22nd  from 11:30 am to 2:30 pm

At Sports Basement 1590 Bryant St, San Francisco.

  • 10% discount at the store
  • 10% of the revenues from your purchases will go to the sarcoma research (of these 100% to sarcoma research)
  • Free drinks, beers, and snacks will be provided

You can pick up your bib if you are already registered for the BeatSarcoma Fun Run or you can register for the Fun Run during the party.

 http://www.beatsarcoma.org/BeatSarcoma_Fun_Run_2009.html

Monday, March 2, 2009

Newsletter 2009

We have published our 2009 Newsletter - you can access it by clicking on the link below:


Happy reading!

Wednesday, February 25, 2009

"Navigating through cancer" - Stanford talks about BeatSarcoma


Source: communitymednews.stanford.edu

"Dancing queen, young and sweet, only seventeen"* raises over $600 for BeatSarcoma


"When you are little, death never really crosses your mind. Swimming in the pool, drinking lemonade and eating popsicles when you are 6 aren’t exactly the moments in life when one explores deeper into the meaning of life and the possibility of death. It especially never plagued me. My childhood was relatively normal. I was never hit with any sorrow or strife. I had my friends and I had my family. Nobody was ill, nobody was suffering. My only worries were where I had left my Barbies or if it would be warm enough for me to go swimming (in Texas though, this problem rarely was an issue).


I feel that for Andy and Nikki Philips, this probably was their only issue at the time as well. Living just a few minutes away from each other, seemingly every summer day consisted of playing with them. My memories of our little play dates are limited and hazy, but whenever I think about them, although I can not recount exactly what we did, I still feel love and warmth in my heart. As we grew older, we grew away from each other as well. We were still close, and whenever I saw them I enjoyed every moment of it. However due to house relocations and the increasing amount of school work one tends to find as they graduate elementary school, those moments slowly decreased. 


We heard that Andy had Osteosarcoma in November of 2007. Andy’s primary tumor was found in his upper left humerus and he had reverse total shoulder surgery on January 29th 2008. He had aggressive chemotherapy in February 2008, continuing for quite a number of months. Intense radiation in September 2008 alleviated much pain. However two months later his journey ended at home in the loving care of his family. When I heard of his passing, my child-like naivety was shattered. What do you mean he has died? No, that’s impossible, he’s only a kid! Death was always just a second thought for me. I knew it existed, I knew it would happen, but never to someone who was my age. We had visited him during my spring break of 2008 and he seemed in high spirits. He was talkative, laughing, smiling—acting like a kid. It reminded me of how when we were kids, Andy, Nikki and I would all play and laugh and giggle. I remembered how happy he was then. Nothing made us grieve or worry. Life was simple and we enjoyed living it.


Having someone so young taken from us made me realize how precious life truly is, how delicate it is and how easily it can be taken from us. I think of it as a gift now, as a wonderful little present wrapped in a beautiful pink bow. So when my birthday approached in February, I thought of what I truly wanted and I realized all I wanted was to enjoy and celebrate life. I wanted to celebrate those many popsicles I had eaten and those hours I had swum with Andy and Nikki. I wanted to just enjoy living life again, simple and fun. I wanted my guests to have fun and, even it was for just a few hours, be able to act like kids again. And what’s more fun than rollerblading? Turning 17, I figured the ABBA song "Dancing Queen" would be fitting, since in the song she is turning 17.


We all acted goofy, dressing up and falling down as we turned corners. We had fun and we laughed. Andy had always been funny and loving. He had a warm heart and was always making jokes. Andy had requested that when he passed to donate to BeatSarcoma. To honor him, not as a cancer victim but as a fun and loving child, I would give to BeatSarcoma. I requested that my guests bring $10 to donate instead of presents. Andy had given us love and light and laughter and we should do the same. 




Even when he was in the hospital when last I saw him about a year ago, his spirit and bright smile touched my heart. My birthday party was not a celebration of my turning 17, but of Andy being with us. Instead of dwelling on what we lost, I saw what we gained while he was here. I remembered how we would play and laugh and giggle and be kids. Although sometimes that pang of grief strikes just the right place in my heart, the warmth from those memories tends to mend my heart after it has had its few moments of sorrow. 

Life is precious and should be treated protectively, but it’s not something we can't enjoy. You can have your birthday cake and eat it too. And although sometimes we might hit a few sour patches in the dough, that cake is still covered in icing and sprinkles. On February 12th 2009 from 9 to 11pm, everybody only saw the sprinkles. In the end we raised $635 for BeatSarcoma. But the true intent of my party was to remember Andy, to have fun and laugh.


Live, laugh and love! Life is too short not to…"


By Maria Sterrett with parental authorization

* Chorus lyrics from 'Dancing Queen' by ABBA


So...



And thank you for being such an inspiration for us all.


The BeatSarcoma Team


You too can set up fundraising parties or event - for more info, you can contact us at info@beatsarcoma.org or visit our website: www.beatsarcoma.org.



Monday, February 9, 2009

MD Anderson Webcast: Sarcoma and Osteosarcoma

Here are a couple of webcasts discussing sarcoma and osteosarcoma with medical experts from the M.D. Anderson Cancer Center.  All of their programs are entirely free for downloading or streaming. 

For more information and to listen, visit the links below:

http://www.mdanderson.org/about_mda/patientpower/display.cfm?id=ECDCAAAE-73CA-431C-876EAAA9652EDAB7&method=displayfull

 http://www.mdanderson.org/about_mda/patientpower/display.cfm?id=c515805f-2660-47d6-89d2b123dd7809bd&method=displayfull

Also, all Patient Power sarcoma replays are available at:

http://www.patientpower.info/listenhealthtopiclist.asp?Topic=Sarcoma

Saturday, February 7, 2009

BeatSarcoma made a $11,000 research gift to Stanford


At the end of last year, BeatSarcoma presented Charlotte Jacobs, M.D., Drs Ben and A. Jess Shenson Professor of Medicine at Stanford University, a $11,000 check specifically for sarcoma research.


Monday, February 2, 2009

Registration now open for BeatSarcoma Fun Run - March 29, 2009


You can now register online for the BeatSarcoma Fun Run 2009!
You can also donate online or become a fundraiser: http://www.active.com/donate/beatsarcomafunrun

When: March 29, 2009 - 8:30AM start for 10K. 9:00AM start for 5K
Where: Conservatory of Flowers, Golden Gate Park, San Francisco
What: 10K - for runners only and 5K for runners, walkers, strollers, flowers, etc...

What is great about it!
1) Free t-shirts to all finishers
2) Free massage to all participants
3) Kids category!  - with a medals and a prize!
4) Prizes and /or medals available for top finishers:
5) Awards for the top fundraiser:
  • $200 Gift certificate from San Remo Hotel
  • Day sail on the Bay for 2, wine included
And check out the event page

Sunday, January 25, 2009

Regatta Photoshoot for BeatSarcom'Art

Rich Cox generously offered his talent and his time, shooting a regatta on San Francisco Bay - to support sarcoma research. 100% of the proceeds from the sale of these photographs will go to BeatSarcoma, "for the cause".

View the pictures: photo.beatsarcoma.org

[DSC_1140.jpg]


If you are interested in participating in BeatSarcom'Art, please email us!

Monday, January 19, 2009

BeatSarcoma 2008 Initatives

  • Pacific Cup 2008 - raised ~ $4,000

Monday, December 1, 2008

More Sarcoma Stats - Villejuif

"L’ostéosarcome est la plus fréquente des tumeurs malignes prenant naissance dans l’os. Soixante pour cent de ces ostéosarcomes surviennent chez des enfants âgés de 10 à 20 ans."
Osteosarcoma is the most frequent bone cancer. 60% of these tumors occur in children aged between 10 to 20 years-old.

"Les tumeurs d’Ewing surviennent le plus souvent dans la seconde décennie de la vie ; elles peuvent se rencontrer avant 5 ans et sont rares après 30 ans. Il existe une prédominance masculine avec 1,2 à 1,5 garçons pour 1 fille."
Ewing's sarcoma occurs most often in the second decade of life; some have been diagnosed in patients under 5-years old and they are very rare in patients over 30. They seem to affect primarily boys, with 1.2 to 1.5 boys diagnosed for every girl.
(cause is unknown)

"Dix à 20 % de ces sarcomes restent inclassables. Les termes de sarcomes à cellules "rondes", à "petites cellules", à "cellules fusiformes" sont alors employés."
10 to 20% of sarcomas remain unclassified. They are typically referred to as round cell tumors, small cell tumors or spindle cell tumors.

Rhabdomyosarcoma is the most frequent of all sarcomas (60% of them). It occurs primarily among children under 5 or teenagers. There is no known cause.


Source: 


'Sarcomas is the most common hard tumor in young adults today'


Remember that cancer is not just carcinoma, or melanoma or leukemia/lymphoma. Carcinomas account for the overwhelming majority of the cancers and they arise in organs, such as the breast, liver, prostate, pancreas, etc...

The incidence rate of sarcoma decreases with age...it usually is the opposite for carcinomas.

Note that unlike other types of cancer, there is no known lifestyle or genetic cause to sarcoma (such as smoking, eating fatty food, lack of exercise). There are some environmental factors such as exposure to certain chemicals, or side effects of radiotherapy but they help explain only very few cases of sarcoma. So 'active prevention' by patients is not possible today - it might be if we can help researchers better understand what might trigger or highly correlate with the presence of the disease.

Tuesday, November 25, 2008

BeatSarcoma announces BeatSarcom'Art


BeatSarcoma's mission revolves around raising awareness for a little understood and little known cancer as well as enabling the ingeniousness of scientists by raising funds to support sarcoma research. To help with this goal, BeatSarcoma is launching a new program, BeatSarcom'Art, aimed at raising funds while providing visibility for the genius of little known artists. Proceeds from the sale of the paintings will go to the artist so he can continue to create. BeatSarcoma will charge a hosting fee. 100% of this fee will go toward sarcoma research. Prices are all inclusive.

The first event will be a private art exhibit for painter Herve Gigot, from Benin, West Africa. Mr Gigot draws his inspiration from the world around him and portrays himself as the messenger of those in need. With its lines and colors his paintings reflect the emotions, gestures, and attitudes that make up everyday life. His creations are explosions of joy, peace, friendship and sadness.
A versatile artist, Hervé expresses himself not only with acrylic, watercolor and oil, but also with natural materials such as clay, mahogany, and coffee, at times combining techniques. His art reveals his identity: Africa! Its incomparable richness and beauty, past and present, through its colors and exotic fragrances.

In particular, this exhibit speaks for the children who battle cancer, the women that are affected by a disease 'caused by ill-meaning spirits' - and brings a message of hope. Mr Gigot was moved by the lack of diagnostics tools and screening infrastructure for cancer in general and sarcoma in particular, in Africa.

View the paintings (email info @ beatsarcoma.org if you are interested in purchasing a painting)

If you are interested in receiving an invitation for this event, please email us.

Videos of the artist available at:



Thursday, November 13, 2008

BeatSarcoma issues a $20,000 research gift to Stanford University

Nathalie Criou, President of BeatSarcoma and Nathan Bossett, CFO, awarded Stanford University the first BeatSarcoma research gift. BeatSarcoma works closely with the medical community to identify under-funded high impact projects that will be conducted by leading non-profit research institutions. It favors fundamental and translational research as the funding needs there are greater and the benefits far-reaching.

'Stanford is a world-class institution that is home to several physicians nationally known for their understanding of sarcomas', says Nathalie Criou. 'when I first came to the Cancer Center for treatment, its team approach to sarcoma research and patient care had shown some great results.'







From left to right: Charlotte Jacobs, M.D., Nathan Bossett and Nathalie Criou

The current knowledge of sarcoma is so limited that specialists find it hard to issue accurate and timely diagnoses. This is an important first step toward effective treatment plans. It is one of the reasons why research efforts focusing on pathology can open the door to so many new developments.

One of the goals of the project coordinated at Stanford is to expand tumor tissue collection, banking and analysis of all types of sarcoma to help physicians better predict clinical outcomes. 

Charlotte Jacobs, M.D., Drs Ben and A. Jess Shenson Professor of Medicine at Stanford University, says that 'sarcoma is a challenging disease that primarily affects people in the prime of their lives. It is also severely under-funded and research is still in its infancy. This gift from BeatSarcoma will enable the multi-disciplinary group of clinicians and researchers at Stanford to understand better the underlying pathology of the disease. In turn, this knowledge will help clinicians around the world make better treatment recommendations.'

To read more about the project, click here.

Tuesday, November 11, 2008

The Perfect Holidays Gift

BeatSarcoma has a portfolio of photographs that can be turned into cards, presents, clothing, playing cards, puzzles, key rings, etc...

They make perfect gifts! And all proceeds go to supporting Sarcoma Research - so you are making a double gift: life for sarcoma patients, and art for your loved ones.

Click on the BeatSarcoma Photo Link to start.


Dear Santa Claws,

I'd like to order the mouse pad with some cool BeatSarcoma photos on it. I have been a good kitty.

Thanks,
Pumpkin
BeatSarcoma MasCat

Wednesday, November 5, 2008

Announcing the Sarcoma Cup 2009 - August 22, 23 2009





BeatSarcoma and the Richmond Yacht Club are excited to announce the second edition of the Sarcoma Cup - it will take place on August 22&23, 2009 on San Francisco Bay. All proceeds will go to BeatSarcoma.
More details on the event website.


The 2008 Sarcoma Cup raised just shy of $18,500 - let's at least double this amount this year!

Tuesday, October 14, 2008

BeatSarcoma Annual Volunteer Dinner - 2008

BeatSarcoma celebrated its first annual volunteer dinner in its San Francisco location. People who contributed to the BeatSarcoma Fun Run and Sarcoma Cup 2008 met to enjoy some - oh so French - crepes!!

If you are interested in volunteering for BeatSarcoma, or if you have ideas of activities and program, don't hesitate to email us! You can check the currently available opportunities on our 'volunteer opportunity listing'.


Nathan, BeatSarcoma's CFO, dutifully preparing a cheese/ham/tomatoes crepe.

Mark, BeatSarcoma's sponsorship team lead for Sarcoma Cup 2009 enjoying the above creation!

Tuesday, August 26, 2008

A Snapshot of Sarcoma - from National Cancer Institute

Incidence Rate Trends

Sarcomas are a diverse group of malignant tumors that develop from fat, muscles, nerves, joints, blood vessels, bones, and deep skin tissues. Sarcomas are difficult to differentiate from other malignancies when they are found within organs; thus, they are frequently misdiagnosed and highly underreported.

As a result, although the incidence estimates presented here include the best available data, they are probably low. Because sarcomas often afflict people in the prime of life, the number of years of life lost is substantial despite the relatively low incidence.

It is estimated that approximately 11,590 Americans will be diagnosed with sarcoma and 4,890 will die from the disease in 2007.

Soft tissue sarcoma1 and osteosarcoma (bone sarcoma) incidence rates have remained relatively constant over the past 30 years; however, soft tissue sarcoma is more deadly due to the lack of detectable symptoms at early disease stages. Several subtypes of osteosarcoma and soft tissue sarcoma exist; the exact number of Americans with each sarcoma subtype is unknown.

Source for incidence data: Surveillance, Epidemiology, and End Results (SEER) Program and the National Center for Health Statistics. Additional statistics and charts are available at http://seer.cancer.gov/.
1Does not include Kaposi sarcoma, which is addressed in a separate Snapshot.
http://planning.cancer.gov/disease/Sarcoma-Snapshot.pdf

Wednesday, August 6, 2008

Pacific Cup for Team Sarcoma

Nat and a few bruises from the 'bouncing around'...

Elise was eager to raise funds!

Nathan is multitasking at the helm

The team proudly displaying their "Team Sarcoma" bracelets at the finish in Hawaii.

And Elise was proudly displaying the Team Sarcoma logo!

Elise successfully completed the 2070 nautical-mile run from San Francisco to Hawaii during the Pacific Cup raising about $4K for sarcoma research in the process.

BeatSarcoma would like to thank all the Beethovens (Team Elise) who made this adventure possible. More photos and videos available at blog.beatsarcoma.org.

Pacific Cup 2008 Crew

Nate - Skipper
               
Nathan is a long-time sailor and racer returning to blue waters after a few years of mostly bay racing and coastal work. He is a naval architect/marine engineer working in heavy industry (tankers, containerships, terminals). focusing on software. After a few crewed runs several years ago, 2008 will be his first double-handed Pac Cup.

Nat - Navigator

During the day, Nat is a Product Manager at Google and at night she helps run BeatSarcoma. She took up competitive sailing after she landed a job in the UK, a sailor's heaven. Despite a few minor setbacks such as drifting for four days in the English Channel, sinking in the Pacific or being knocked overboard in San Francisco Bay, she bought "Elise", an Express 27, in 2006. She races under the burgee of the Saint Francis Yacht Club. 2008 will be her first Pac Cup.

Thursday, July 3, 2008

Photos from Norcal Sailing

The picture galleries from Norcal Sailing are UP! Check out http://www.norcalsailing.com/galleries.html
Sample below

BeatSarcoma thanks its volunteers at the Sarcoma Cup '08

More offshore activities pictures available at www.Beatsarcoma.smugmug.com
100% of the proceeds from the sale of pictures go to BeatSarcoma

Wednesday, July 2, 2008

Sarcoma Cup '08 Photos





From www.h20shots.com (c)2008
More available at: beatsarcoma.smugmug.com
100% of the proceeds from the sale of pictures go to BeatSarcoma
Posted by Picasa

Sarcoma Cup - Regatta Chair's Address

From Mark Lowry, Sarcoma Cup '08 Regatta Chair - Richmond Yacht Club.

2008 Sarcoma Cup

On Saturday June 28 Bay Area sailors were treated to the first racing day of the inaugural Sarcoma Cup Regatta with tight buoy racing action; and what a treat it was as the smokey haze from Norcal’s wild-fires gave way to some blue-sky and perfect sailing breezes. Four divisions raced 3 races each on the southern edge of the Berkeley Circle.

This regatta was the brain-child of Express 27 sailor, Nathalie Criou. Nat is a recent and very grateful survivor of a brush with sarcoma, a rare, little-understood, scarcely researched, and often deadly cancer. This encounter has inspired her to action, creating the non-profit BeatSarcoma, Inc., to raise awareness and research funding for this disease (see www.beatsarcoma.org for details). The Sarcoma Cup was designed to be a celebration of the sailing life and a fundraiser for the BeatSarcoma foundation.

The buoy courses were windward-leewards with separate starting and finishing lines located to leeward of the leeward mark with downwind finishes prescribed for all courses. This efficient arrangement gave the racers what they wanted: more racing and less waiting. Time between races clocked in at around 10 minutes. Fred Paxton’s all-star Richmond Yacht Club race committee set impeccably square lines and true courses and ran like the well-oiled race management machine that it is.

“The circle” often known for its near-nuclear conditions during prime summer wind season on the bay, was a kinder-gentler place for this event, with winds barely reaching15 knots until near the end of race 3 which might have seen a gust or two near 20. Nope, no 35 knot rig-bustin’ carnage on the circle here – we have it on good authority that RYC PRO Paxton may have exercised his well-known divine connections with the Wind Gods on this occasion to quell the circle beast, but perhaps that’s just a rumor. No matter, the wind was perfect, at the low end of the #3 for the Express 27s – easy sailing.

Division A (PHRF) was dominated by the RYC team aboard Peter Kreuger’s “Howl”, with 1-2-1 place finishes. 2nd place in Division A went to Mark Howe’s “White Fang” of RYC and 3rd place went to Glenn Isaacson’s “Q” of SFYC. 4TH place went to Nick Barran’s new XL of RORC.

The Express 27 Division was beaten up by Tom Jenkin’s “Witchy Woman” team from Morrow Bay (1-1-2). Ray Lotto’s “El Raton” of StFYC won the tie-breaker over Eric Deed’s “Magic Bus” for 2nd, with “Magic Bus” taking 3rd. Mark Lowry’s Xena squeaked ahead of Phil Krasner’s “Wetsu” by one point to take 4th.

The Olson 25 fleet mixed it up well with Mark Simpson’s “Shadowfax” taking 1st and Tom Nemeth’s Clean Sweep taking 2nd.

PHR Division E was led by a pair of venerable Santana 22s. 1st place went to Tom Montoya’s “Meliki”, and 2nd place went to Stephen Buckingham/Chris Giovacchini aboard “Tchoupitoulas”. 3rd place fell to Bill West’s Wylie Cat 30 “Crinan II”.

After a very pleasant early afternoon of “all racing no waiting”, the fleet sailed up to the sunny docks of RYC on the “Richmond Riviera” in t-shirts and shorts to the strains of the very cool jazz band, ECQ, dock-side. To go with that jazz you were immediately offered a cool RYC/ Sarcoma Cup “Hurricane” Hunger pang? Hey we can fix that too, with a huge table of dockside appetizers… very tasty appetizers I might add. Sailors milled around on the docks listening to the great band, sipping cocktails, munching appetizers, lying about the races and leisurely putting their boats away. A great way to finish off the afternoon.

This very full day of regatta entertainment was completed with a sit-down evening buffet and an entertaining raffle-prize drawing followed by the second live band, Orquesta Gitano, who dished up salsa rhythms that had to be danced to… big fun !

Sunday’s main event was the pursuit race. This is a reverse handicap race in which the boats in all divisions are thrown together and compete as one fleet. The starting times are adjusted such that if all boats are perfectly handicapped and perfectly sailed they should all finish at the same time. The course started on the south side of the Berkeley Circle and took the fleet around Alcatraz (to starboard) and Angel (to starboard). The race began with the wind under 15 knots (comfortably within #1 range for the Express 27 fleet). Most of us were expecting that we would be pretty over-powered by the time we made Alcatraz, but that was not to be – more welcomed, mellow-weather surprises.

Those that wisely worked south first on the beat caught the ebb earliest and were first to round Alcatraz, this move proved to essentially decide the race. Tom Jenkin’s Express 27 “Witchy Woman” was the first to round Alcatraz, followed by Vaughn Seifer’s Moore 24 “Flying Tiger”, followed by Ray Lotto’s Express 27 “El Raton”, shortly followed by Mark Lowry’s Express 27 “Xena”.

The reach from Alcatraz to Angel was, as usual too close to carry the kite with most boats able to set just west of Angel. The majority of the fleet sought relieve from the ebb on the Marin Shore of Racoon Straights. This was the favored side for relief, mostly because it led you clear (more-or-less) of the dreaded lee of Angel. From here it was a straight-shot to the finish.

The three lead boats successfully held off the charge of the pursuing bigger and faster boats for an exciting finish: Tom Jenkins of the Express 27 “Witchy Women” took 1st, with Ray Lotto’s Express 27 “El Raton” close behind in 2nd, followed by Vaughn Seifer’s Moore 24 “Flying Tiger” in 3rd. Peter Krueger’s “Howl” took 4th as they rolled Mark Lowry’s 5th place Express 27 “Xena” in the final 200 yards. Dan Pruzan’s Express 27 “Wile E. Coyote” held off the advance of pursuing boats for 6th place.

From the finish, just off the Richmond Yacht Club breakwater, it was just a matter of dousing the kite and you would soon be kicking back with a glass of wine from the excellent selection in the complementary Sarcoma Cup dockside bar, or cold keg beer if you preferred, accompanied by great munchies. This had to have been the best complementary wine to be served at any Bay Area regatta (certainly in the 25 years of this observers experience). The opening entertainment for the afternoon’s dockside activities was the charity auction which featured some spirited bidding, pitting race course rivals against each other in seemingly fierce bidding wars, all in good-natured fun for a great cause.

Given the long list of dockside activities that we have reviewed, it’s hard to believe that we have missed one. But, we would be remiss in not mentioning that the festivities actually got started Friday evening with a slideshow presentation entitled “Whale Sinks Yacht – the Last Voyage of XL”. Nat presented a very absorbing account of the sinking of XL from her perspective as member of the delivery crew bringing the yacht back from a Pacific Cup race to Hawaii. Amazingly they were able to take quite a few photos to document the ordeal which made for a very interesting slide show.

The Sarcoma Cup featured stellar dock-side activities due to all the efforts of the BeatSarcoma volunteers and the efforts of many of the big-hearted stalwarts of the Richmond Yacht Club, including RYC’s first couple, Commodore Torben Bentzen and Judy Bentsen. And this event probably would not have happened without the support of RYC’s Standing Race Committee, Chaired by Gail Yando, and the support of RYC board of directors.

The inaugural Sarcoma Cup Regatta turned out to be a great combination of excellent sailing, very entertaining dockside activities, and significant benefit to a good cause as it raised over $10,000 for sarcoma research. For those of you that missed it this year, we hope to see you at the next one.

Sarcoma Cup T-shirts for sale


Two options:
- long sleeve cotton
- short sleeve microfiber
- both at $15
- 100% of this goes to support Sarcoma research
- please contact the sarcoma cup team: sarcomacup@ (all addresses are beatsarcoma.org)

Sarcoma Cup

We held the first ever Sarcoma Cup this weekend at Richmond Yacht Club and in the challenging waters of San Francisco Bay. We will post shortly a more detailed account of the event but I wanted to share a quick summary with all of you.

We haven't finalized the accounting but our first estimates indicate that we have raised over $10K at this inaugural event.

We have achieved a lot more.
- Andrew, the 16-year-old osteosarcoma patient to whom the regatta was dedicated volunteered at the event and will keep invaluable joyful memories of this experience
- One of our volunteers unexpectedly rediscovered the joys of sailing on Ay Caliente, a Beneteau
- Regatta participants discovered a very talented painter from a tiny nation in West Africa who contributed a beautiful painting to the charity auction. It is one of these rare connections that wouldn't have happened without the magic of this weekend
- A lot of people had an amazing weekend to share with their friends and family
- Many new friendships have started under the auspice of a weekend dedicated to life and hope
- Many people were given an opportunity to give and engage in a deeply rewarding activity. It can be so gratifying to generate a lot of smiley faces

The Sarcoma Cup itself is a beautiful and uncommon piece of work, but what else could best symbolize the richness of these moments.

You can read more about the sarcoma cup on the:

Stanford Patient News

Norcal Sailing

and see pictures of the regatta

Tuesday, June 17, 2008

This year's Sarcoma Cup will be sailed for Andrew

Participants in the Sarcoma Cup '08 will celebrate Andrew's courage. Andrew is a local junior sailor who was diagnosed at 15 with osteosarcoma in his left humerus in November 2007. Osteosarcoma is a form of hard-tissue sarcoma, arising in the bones. He began induction chemotherapy four days later. His initial MAP protocol involved 3 chemotherapy cycles of doxorubicin/cisplatin/methotrexate, followed by resection 'reverse total shoulder' reconstruction surgery on his left humerus and shoulder.

The surgery was quite successful and Andrew retains a fair amount of motion with his left arm.

After a 6-week recovery, he resumed another cycle of MAP chemo, then three cycles of Etoposide and Ifosfamide. He will participate in an clinical trial of R1507 starting the week of June 16 to help reduce his metastases. Andrew's protocol director is Dr. N. Marina, in pediatric hematology/oncology at Lucille Packard Children's Hospital at Stanford.


Andrew has always loved sailing, going out with friends on the SF Bay, to coastal sailing with Seacamp out of Santa Cruz, and Odyssey in the San Juans. His parents have been wanting to take him with Moorings to the British Virgins...He would be THRILLED to see his sailing family come out in numbers to show their support, as he will attend the event...and maybe even go out for a spin!



The Sarcoma Cup team is honored to have Andrew by its side to help build awareness for the tremendous need for funding for more sarcoma research, particularly for targeted therapies.

[Addendum Fall 2008 - Andrew passed away from osteosarcoma in October 2008. He was 17]

Thursday, June 12, 2008

West Marine Fleet Night in pictures!

BeatSarcoma and Team Sarcoma join forces


The Pacific Cup initiative from BeatSarcoma is now part of the international Team Sarcoma effort - during the sarcoma awareness week. The team name is BeatSarcoma. The Team Sarcoma Initiative is an internationally coordinated set of events to raise awareness of sarcoma and raise funds to support sarcoma research, clinical trials and patients and family services. The initiative is an international Sarcoma Awareness Week as thousands of people will be taking part in over 70 events taking place in 14 countries during July 12-20, 2008.

You can find more information at http://www.team-sarcoma.net/.

We even have a Facebook page for this event!

Tuesday, June 10, 2008

Sarcoma Cup: List of Prizes & Notice of Race posted

NOR

June 28 Saturday Online Registration
-
Click Here
Registered Competitors

June 29 Sunday Online Registration - Click Here
Registered Competitors

Off Water Activities

List of Prizes

Set up your boat fundraising page in under 5 minutes or donate directly at:
http://www.active.com/donate/sarcomacup08

Monday, June 9, 2008

Sarcoma Cup Event Schedule - June 28 & 29

Don’t miss out on the entertainment we have planned for you!

All proceeds go to BeatSarcoma

You can also create your fundraising page in under five minutes at http://www.active.com/donate/sarcomacup08

Round up your friends and family and win $100 West Marine certificate!

Friday, June 27th

1200

Participating yachts are welcome to begin rafting at the Richmond YC.

1930

West Marine Fleet Night Draw

Anyone who spent more than $100 at the West Marine Fleet Night, June 19th, will be entered in a draw to win an ‘Elise’ fleece and a $75 gift certificate from West Marine

“Whale Sinks Yacht – the Last Voyage of XL”

Slideshow following the regular RYC dinner. Come hear a first hand account of this trans-Pacific adventure. A discretionary donation is requested for those attending the slideshow. Visiting sailors may purchase guest dinner tickets and attend the slideshow.

Saturday, June 28th

0800

Free gourmet coffee and pastries. Gin fizzes available dockside

Race T-shirts are available for purchase and goodie bags will be distributed to each skipper, along with various freebies and one free drink coupon for each of your crew. These will be redeemable after the race on Saturday at any of the auxiliary bars. Gin fizzes will be available for $2.

1100

Mark Racing

The first warning off Southampton and 3 buoy races to follow. Peak wind season and orchestrated by Fred Paxton. Win your personal trophy and some cool awards.

Bring a digital camera and capture precious moments onboard. We’ll have the children vote on the funniest one!

Enjoy!

1300

Intro to Improv for Kids

Enjoy a fun improvisation theater class, led by Amy Houtrow, Sunday Player at BATS Improv (www.batsimprov.org)

Tickets: $2

Tickets available for purchase at the Welcome table.

1500

Live Jazz, appetizers, punch and beer

Come back to a live jazz band, ECQ – redeem your free drink coupons and treat yourself to a glass of rum punch or beer, while savoring a few appetizers.

Race t-shirts, sailing photos taken by Jonathan Fujirawa and off-the-water surprise moments captured by David Ruiz will be available for purchase. You can also buy an auction ticket for the Sunday charity auction, and raffle tickets for the party!

1800

Authentic Italian dinner and slideshow featuring YOUR pictures

Win a North Sails hat!

Delight your palate with an authentic Italian pasta dinner, with three different kinds of pasta, a caesar salad, French bread on the side and cookies to top it off – everything prepared by Michael, RYC’s excellent chef.

Secure your dinner ticket in advance and avoid the line: online tickets are only $14 Vs. $15 at the door ($12 for children). Bring your race pictures to upload and share in a slideshow of the day’s events.

The funniest picture, as voted by all the children, will win its author a nice North Sails hat.

1830

Shake it to live Salsa delivered to you by Orquesta Gitano

Win an inflatable PFD at the Sarcoma Cup Raffle!

The party continues with more live music, and the exciting raffle drawing. Get in the running for UK Halsey Sails backpacks and hats, sailing books “Endurance by F.A Worsley, author of Shackleton’s Boat Journey”, an ‘Elise’ dri-mesh T-shirt and other books

Sunday, June 29th

0800

Pancake breakfast

Sailor’s Pancake breakfast will be served for $5 until 0930. T-shirts and auction tickets available for purchase.

See individual start times

Pursuit Race

Get on the water for the pursuit race – bring your camera and show off your crew. Laughing guaranteed…You will be able to upload your pictures via the Sarcoma Cup website after the race.

ASAP after the race

Drinks and charity auction

Meet after the race for drinks at Richmond YC. Race T-shirts and sailing photos brought to you by H20Shots (Erik Simonson) are available for purchase. Preview the high value prizes for the charity auction to follow the awards ceremony.

Fleece, Binoculars, Navigation equipment, PFD, painting and photography, grappa, etc…

ASAP after the charity auction

Award Ceremony

Bring the Sarcoma Cup back to your Club!

Awards ceremony at RYC. Enjoy a glass of wine from our specialty bar and admire the perpetual trophy, exclusively made for the Sarcoma Cup by master woodturner and sailor Jerry Kermode. Exquisite hand carved trophies and watertight Stowey Bags offered by Dan of all Trades are awarded to the winners of each division.

This event could not happen without the generosity of our partners.


More detail and registration at: http://www.beatsarcoma.org/Sarcoma_Cup.html

Tuesday, May 27, 2008

Fleet Night at West Marine - June 19th


Support Fleet Night – Benefiting BeatSarcoma
Thursday, June 19th from 4:00-7:30pm

5% of all fleet night sales at the West Marine location in Richmond,
will go to the BeatSarcoma Foundation

Everyone who spends more than $100 at fleet night will be entered in a drawing for an 'Elise' fleece jacket and a $75 West Marine gift certificate. Drawing will take place at the Sarcoma Cup

Store Location: 501 West Canal Blvd. Suite D
Richmond, CA 94804
(510) 965-9922

The Birth of the Sarcoma Cup

Nat's story has inspired people to contribute their unique talents to the regatta. Arborist Dan Ratner collaborated on the base that displays the trophy cup with woodworkers Vaughn Tan and Celia Saino. Celia said, "Dan and I called master woodturners Jerry and Debbie Kermode to ask for help turning the walnut burl into a beautiful trophy cup.


The Kermodes are avid windsurfers and had recently lost a close friend to cancer. After hearing Nat's story, Jerry said, 'You hit all the right buttons' and agreed to meet the following week to create the trophy in his Sebastopol studio.

The wood for the Sarcoma Cup was salvaged from a local California claro walnut tree and donated by Dan Ratner.

Dan, owner of Dan of all Trades - at work with the Master.

The Cup now eagerly awaits the Sarcoma Cup regatta, held on San Francisco Bay, on June 28 & 29.