tag:blogger.com,1999:blog-57518797018661729362024-03-12T16:42:28.514-07:00Beat SarcomaNathalie Criou Racinghttp://www.blogger.com/profile/09548331255173461892noreply@blogger.comBlogger102125tag:blogger.com,1999:blog-5751879701866172936.post-56577715598203205692016-08-29T20:21:00.001-07:002017-07-17T20:45:40.353-07:00Applying for Disability for Sarcoma<br />
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<span style="background-color: transparent; color: black; font-family: Calibri; font-size: 11pt; font-style: normal; font-variant: normal; font-weight: 700; text-decoration: none; vertical-align: baseline; white-space: pre-wrap;">Applying for Disability for Sarcoma</span></div>
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<span style="background-color: transparent; color: black; font-family: Calibri; font-size: 11pt; font-style: normal; font-variant: normal; font-weight: 400; text-decoration: none; vertical-align: baseline; white-space: pre-wrap;">If you or a loved one has been diagnosed with sarcoma, you may be worried about your ability to work at your current job while receiving treatment. Fortunately, there could be financial resources available for you from the Social Security Administration (SSA). Sarcoma that is advanced or recurrent automatically meets the SSA’s medical eligibility requirements. With newly diagnosed or early stage sarcoma that responds to treatment however, getting disability can be more difficult, though it is still possible. </span></div>
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<span style="background-color: transparent; color: black; font-family: Calibri; font-size: 11pt; font-style: normal; font-variant: normal; font-weight: 400; text-decoration: none; vertical-align: baseline; white-space: pre-wrap;">Whether you automatically qualify or must fight a little harder to get approved, the disability application process is worth the time and effort. Disability payments are issued monthly and this consistent income can help you and your family get by without your regular paycheck.</span></div>
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<span style="background-color: transparent; color: black; font-family: Calibri; font-size: 11pt; font-style: normal; font-variant: normal; font-weight: 700; text-decoration: none; vertical-align: baseline; white-space: pre-wrap;">The SSA’s Disability Programs</span></div>
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<span style="background-color: transparent; color: black; font-family: Calibri; font-size: 11pt; font-style: normal; font-variant: normal; font-weight: 400; text-decoration: none; vertical-align: baseline; white-space: pre-wrap;">Disability benefits are available to individuals of any age that have a qualifying medical condition and meet the program-specific, technical eligibility requirements. Disabled workers receive benefits through </span><a href="http://www.disabilitybenefitscenter.org/social-security-disability-insurance/how-to-qualify" style="text-decoration: none;"><span style="background-color: transparent; color: blue; font-family: Calibri; font-size: 11pt; font-style: normal; font-variant: normal; font-weight: 400; text-decoration: underline; vertical-align: baseline; white-space: pre-wrap;">Social Security Disability Insurance</span></a><span style="background-color: transparent; color: black; font-family: Calibri; font-size: 11pt; font-style: normal; font-variant: normal; font-weight: 400; text-decoration: none; vertical-align: baseline; white-space: pre-wrap;"> (SSDI), while applicants with limited income and other financial resources may receive </span><a href="http://www.disabilitybenefitscenter.org/supplemental-security-income/how-to-qualify" style="text-decoration: none;"><span style="background-color: transparent; color: blue; font-family: Calibri; font-size: 11pt; font-style: normal; font-variant: normal; font-weight: 400; text-decoration: underline; vertical-align: baseline; white-space: pre-wrap;">Supplemental Security Income</span></a><span style="background-color: transparent; color: black; font-family: Calibri; font-size: 11pt; font-style: normal; font-variant: normal; font-weight: 400; text-decoration: none; vertical-align: baseline; white-space: pre-wrap;"> (SSI) instead of SSDI. </span></div>
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<span style="background-color: transparent; color: black; font-family: Calibri; font-size: 11pt; font-style: normal; font-variant: normal; font-weight: 400; text-decoration: none; vertical-align: baseline; white-space: pre-wrap;">SSI can be hard to qualify for, as it was designed for the most needy Americans. If you have a spouse who works and earns a decent income, you will not qualify for SSI. On the plus side, if you’ve worked at least part-time throughout adulthood, you’ll almost certainly have earned enough taxable income to qualify for SSDI. </span></div>
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<span style="background-color: transparent; color: black; font-family: Calibri; font-size: 11pt; font-style: normal; font-variant: normal; font-weight: 700; text-decoration: none; vertical-align: baseline; white-space: pre-wrap;">The Sarcoma Disability Listing</span></div>
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<span style="background-color: transparent; color: black; font-family: Calibri; font-size: 11pt; font-style: normal; font-variant: normal; font-weight: 400; text-decoration: none; vertical-align: baseline; white-space: pre-wrap;">Every time the SSA receives an application for disability benefits, they will compare your condition to its own list of qualifying conditions, known as the Blue Book. The </span><a href="https://www.ssa.gov/disability/professionals/bluebook/13.00-NeoplasticDiseases-Malignant-Adult.htm#13_04" style="text-decoration: none;"><span style="background-color: transparent; color: blue; font-family: Calibri; font-size: 11pt; font-style: normal; font-variant: normal; font-weight: 400; text-decoration: underline; vertical-align: baseline; white-space: pre-wrap;">sarcoma disability listing</span></a><span style="background-color: transparent; color: black; font-family: Calibri; font-size: 11pt; font-style: normal; font-variant: normal; font-weight: 400; text-decoration: none; vertical-align: baseline; white-space: pre-wrap;"> requires your cancer has either spread or come back after initial treatment. If you have recurrent sarcoma, or sarcoma that has spread to another region of your body, you will </span><span style="background-color: transparent; color: black; font-family: Calibri; font-size: 11pt; font-style: italic; font-variant: normal; font-weight: 400; text-decoration: none; vertical-align: baseline; white-space: pre-wrap;">automatically</span><span style="background-color: transparent; color: black; font-family: Calibri; font-size: 11pt; font-style: normal; font-variant: normal; font-weight: 400; text-decoration: none; vertical-align: baseline; white-space: pre-wrap;"> qualify for disability benefits. All you’ll need to apply are medical records and biopsy reports proving the advancement of your sarcoma.</span></div>
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<span style="background-color: transparent; color: black; font-family: Calibri; font-size: 11pt; font-style: normal; font-variant: normal; font-weight: 700; text-decoration: none; vertical-align: baseline; white-space: pre-wrap;">Qualifying through an RFC</span></div>
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<span style="background-color: transparent; color: black; font-family: Calibri; font-size: 11pt; font-style: normal; font-variant: normal; font-weight: 400; text-decoration: none; vertical-align: baseline; white-space: pre-wrap;">Although cancer and the treatments necessary to combat it are often disabling, the SSA’s disability programs are designed specifically for people with long-term or permanent impairments and terminal illnesses. Sarcoma that responds to treatment and will not require at least 12 months of chemotherapy, radiation, or other anticancer therapies therefore does not usually meet eligibility rules, at least not through the </span><a href="https://www.ssa.gov/disability/professionals/bluebook/AdultListings.htm" style="text-decoration: none;"><span style="background-color: transparent; color: blue; font-family: Calibri; font-size: 11pt; font-style: normal; font-variant: normal; font-weight: 400; text-decoration: underline; vertical-align: baseline; white-space: pre-wrap;">Blue Book</span></a><span style="background-color: transparent; color: black; font-family: Calibri; font-size: 11pt; font-style: normal; font-variant: normal; font-weight: 400; text-decoration: none; vertical-align: baseline; white-space: pre-wrap;">. </span></div>
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<span style="background-color: transparent; color: black; font-family: Calibri; font-size: 11pt; font-style: normal; font-variant: normal; font-weight: 400; text-decoration: none; vertical-align: baseline; white-space: pre-wrap;">Getting a disability approval outside of the Blue Book however means you must go through additional eligibility determination steps. This process, which is called a “</span><a href="http://www.disabilitybenefitscenter.org/glossary/residual-functional-capacity-RFC" style="text-decoration: none;"><span style="background-color: transparent; color: blue; font-family: Calibri; font-size: 11pt; font-style: normal; font-variant: normal; font-weight: 400; text-decoration: underline; vertical-align: baseline; white-space: pre-wrap;">residual functional capacity</span></a><span style="background-color: transparent; color: black; font-family: Calibri; font-size: 11pt; font-style: normal; font-variant: normal; font-weight: 400; text-decoration: none; vertical-align: baseline; white-space: pre-wrap;">” or RFC analysis, requires the SSA looks closely at all your limitations. They will request you and your doctor complete functional reports. Others, like friends, family, or caregivers you list on application, may also be asked to complete functional report forms. </span></div>
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<span style="background-color: transparent; color: black; font-family: Calibri; font-size: 11pt; font-style: normal; font-variant: normal; font-weight: 400; text-decoration: none; vertical-align: baseline; white-space: pre-wrap;">The SSA uses all of this additional information to understand your symptoms and treatment side effects as well as the limits they impose on you. If the RFC shows you’re unable to work due to your cancer and treatment side effects, then you may be approved, that is, as long as you’re likely to be out of work for the standard minimum 12-month timeframe. </span></div>
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<span style="background-color: transparent; color: black; font-family: Calibri; font-size: 11pt; font-style: normal; font-variant: normal; font-weight: 700; text-decoration: none; vertical-align: baseline; white-space: pre-wrap;">Applying for Benefits</span></div>
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<a href="https://www.ssa.gov/disabilityssi/" style="text-decoration: none;"><span style="background-color: transparent; color: blue; font-family: Calibri; font-size: 11pt; font-style: normal; font-variant: normal; font-weight: 400; text-decoration: underline; vertical-align: baseline; white-space: pre-wrap;">Online application</span></a><span style="background-color: transparent; color: black; font-family: Calibri; font-size: 11pt; font-style: normal; font-variant: normal; font-weight: 400; text-decoration: none; vertical-align: baseline; white-space: pre-wrap;"> is offered for SSDI. SSI applications however require a call to the SSA, at 1-800-772-1213, or a trip to the </span><a href="https://secure.ssa.gov/ICON/main.jsp." style="text-decoration: none;"><span style="background-color: transparent; color: blue; font-family: Calibri; font-size: 11pt; font-style: normal; font-variant: normal; font-weight: 400; text-decoration: underline; vertical-align: baseline; white-space: pre-wrap;">local office</span></a><span style="background-color: transparent; color: black; font-family: Calibri; font-size: 11pt; font-style: normal; font-variant: normal; font-weight: 400; text-decoration: none; vertical-align: baseline; white-space: pre-wrap;">. You can also apply for SSDI locally or over the phone, although filing online may be more practical and convenient. </span></div>
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<span style="background-color: transparent; color: black; font-family: Calibri; font-size: 11pt; font-style: normal; font-variant: normal; font-weight: 400; text-decoration: none; vertical-align: baseline; white-space: pre-wrap;">Disability applications require the disclosure of significant details, including your employment history, education, job training, and financial situation in addition to your medical history. It’s always best to apply slowly and carefully, to ensure the SSA has all the information it needs to make a decision on your sarcoma claim.</span></div>
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<span style="background-color: transparent; color: black; font-family: Calibri; font-size: 11pt; font-style: normal; font-variant: normal; font-weight: 400; text-decoration: none; vertical-align: baseline; white-space: pre-wrap;">Once approved, your family can worry less about income and focus on what’s truly important: recovery.</span></div>
<span id="docs-internal-guid-3b6f626d-53c8-e26d-467e-a1e7c65c9420"><br /></span>
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<span style="background-color: transparent; color: black; font-family: Calibri; font-size: 11pt; font-style: normal; font-variant: normal; font-weight: 400; text-decoration: none; vertical-align: baseline; white-space: pre-wrap;">This article was provided by Disability Benefits Help. If you have any questions on whether or not your sarcoma qualifies for disability benefits, feel free to contact us at </span><a href="mailto:help@disability-benefits-help.org" style="text-decoration: none;"><span style="background-color: transparent; color: blue; font-family: Calibri; font-size: 11pt; font-style: normal; font-variant: normal; font-weight: 400; text-decoration: underline; vertical-align: baseline; white-space: pre-wrap;">help@disability-benefits-help.org</span></a><span style="background-color: transparent; color: black; font-family: Calibri; font-size: 11pt; font-style: normal; font-variant: normal; font-weight: 400; text-decoration: none; vertical-align: baseline; white-space: pre-wrap;"> </span></div>
Nathalie Criou Racinghttp://www.blogger.com/profile/09548331255173461892noreply@blogger.com1tag:blogger.com,1999:blog-5751879701866172936.post-11199767123314094632012-06-08T10:30:00.000-07:002012-06-08T10:30:27.379-07:00Beat Sarcoma donates $15,000 to StanfordBeat Sarcoma recently donated $15,000 to Stanford University, which is funded to do a large study on leiomyosarcoma specimens from tumors that arise either in the uterus or in the soft tissues throughout the body. They will compare these leiomyosarcomas to other sarcomas that occur in the uterus, including endometrial stromal sarcoma and its recently discovered variants.
Matt van de Rijn of Stanford said, "The money will be used at least to a great extent to cover the costs doing the analysis on twelve endometrial stromal sarcomas in this way. We believe that this will be a very valuable addition to our dataset and hope that we will identify not only novel diagnostic markers but also potential therapeutic targets."
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh8quEBbO1ZzB-D_0fbujy816kXuTRpMWWV5Umb5w0H0S2ALLGKz9sXq3w2aVDb3i9282TL7ywa5RWIvjQdxz4VbaghMUrsccO-mOIPmyK-RqQh4zGGb9322MKVIIKuiN663ijW8B3y3zWY/s1600/BeatSarcoma_Stanford.jpg" imageanchor="1" style="margin-left:1em; margin-right:1em"><img border="0" height="240" width="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh8quEBbO1ZzB-D_0fbujy816kXuTRpMWWV5Umb5w0H0S2ALLGKz9sXq3w2aVDb3i9282TL7ywa5RWIvjQdxz4VbaghMUrsccO-mOIPmyK-RqQh4zGGb9322MKVIIKuiN663ijW8B3y3zWY/s320/BeatSarcoma_Stanford.jpg" /></a>
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgK8lCgql9QTyXRuPKSLdR9wilrf680dE28EAMilTPxSeErQiw5TKQEOnJdruAZYW5EWKJTeQ7JqqVHr_St2VqYHfDmPdm0VJ-YXKceIa3Hqj5YPjVfA0YlL0_JqZzH7IIrBzXmiD1N-LPO/s1600/BeatSarcoma_Stanford2.jpg" imageanchor="1" style="margin-left:1em; margin-right:1em"><img border="0" height="320" width="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgK8lCgql9QTyXRuPKSLdR9wilrf680dE28EAMilTPxSeErQiw5TKQEOnJdruAZYW5EWKJTeQ7JqqVHr_St2VqYHfDmPdm0VJ-YXKceIa3Hqj5YPjVfA0YlL0_JqZzH7IIrBzXmiD1N-LPO/s320/BeatSarcoma_Stanford2.jpg" /></a>Laurahttp://www.blogger.com/profile/04864907211796588786noreply@blogger.com0tag:blogger.com,1999:blog-5751879701866172936.post-26950421334840814722012-03-26T13:32:00.004-07:002012-03-26T13:49:40.170-07:00BeatSarcoma makes a $15,000 research gift to UCSFBeat Sarcoma recently donated $15,000 to help fund Dr. Nakakura's sarcoma research at University of California San Francisco. Dr. Nakakura is active in bench-to-bedside (translational) studies aimed at earlier detection of neuroendocrine tumors at at time when there is still the possibility of surgical resection. He is also investigating new and novel therapies for patients with advanced disease who have inoperable tumors.<br /><br />“We are incredibly grateful for the ongoing partnership with BeatSarcoma. Your critical support of our translational research studies will help us to rapidly bring discoveries from the lab to our patients.”<br /><br /><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjPI-e21WTVAAhxdiSR20y2YQTaWx7pi-PRTk6MJPFtvL3vs8uFWvCAzC7FsveKPvNWpQyxFryVUon3Krvrn-ieAfalxLpNB2f9e1bx18azyEz05V96jmVEDGqQOOUxYNfOSayvu6P41en6/s1600/BeatSarcoma.Nakakura.jpg"><img style="display:block; margin:0px auto 10px; text-align:center;cursor:pointer; cursor:hand;width: 320px; height: 240px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjPI-e21WTVAAhxdiSR20y2YQTaWx7pi-PRTk6MJPFtvL3vs8uFWvCAzC7FsveKPvNWpQyxFryVUon3Krvrn-ieAfalxLpNB2f9e1bx18azyEz05V96jmVEDGqQOOUxYNfOSayvu6P41en6/s320/BeatSarcoma.Nakakura.jpg" border="0" alt=""id="BLOGGER_PHOTO_ID_5724309551961172450" /></a><br /><br />Dr. Eric Nakakura is a cancer surgeon who specializes in tumors of the pancreas, bile ducts, liver, and gastrointestinal tract. He also treats soft tissue sarcomas, including tumors of the retroperitoneum, trunk and extremities. At the UCSF Helen Diller Family Comprehensive Cancer Center, he participates in the management of complex gastrointestinal tract cancers, soft tissue sarcomas and gastrointestinal neuroendocrine tumors, including carcinoid and islet cell tumors.<br /><br />For more information on Dr. Nakakura's research, visit http://surgicaloncology.surgery.ucsf.edu/faculty/surgical-oncology/eric-nakakura,-md,-phd.aspx.Laurahttp://www.blogger.com/profile/04864907211796588786noreply@blogger.com0tag:blogger.com,1999:blog-5751879701866172936.post-34019754696181347462012-02-27T09:48:00.001-08:002012-02-27T09:49:56.571-08:00Canadians: Online Discussion for Advanced Soft Tissue Sarcoma PatientsAttention Canadians! Consumer Vision, a national market research company located in Toronto, is seeking individuals who have been diagnosed with Advanced Soft Tissue Sarcoma to participate in a three day online discussion board.<br /> <br />To qualify, patients must have been diagnosed with Advanced Soft Tissue Sarcoma, and currently be undergoing treatment. <br /> <br />Patients will be able to participate in the three day online board from the comfort of their home and at their convenience.<br /> <br />They are offering a $175 honorarium to all those who qualify and participate. <br /><br />(Canadian residents only, please.) <br /><br />If you're interested, contact Melissa Vodopia toll-free at 1-866-967-1596 or via email at Melissa.Vodopia@consumervision.ca.Laurahttp://www.blogger.com/profile/04864907211796588786noreply@blogger.com2tag:blogger.com,1999:blog-5751879701866172936.post-41127254525474217662012-01-24T10:15:00.000-08:002012-01-24T10:21:41.499-08:00Sarcoma Trial at National Cancer InstituteWe wanted to pass on some information on behalf of Dr. Shivaani Kummar at the National Cancer Institute to inform you about a trial for which they are currently recruiting at the NIH - National Cancer Institute. The study is a randomized Phase II trial of Sunitnab vs. Cediranib Monotherapy to treat Alveolar Soft Part Sarcoma, with cross over at disease progression. A snapshot of basic information pertaining to the trial is below. If you have any questions or concerns, please contact:<br />NCI Referral Office: 1-888-NCI-1937 (ncicssc@mail.nih.gov)<br />or<br />Lauren Powell, Clinical Research Coordinator: 301-451-0992 (lauren.powell@nih.gov)<br /> <br /> <br /><span style="font-weight:bold;">Sunitinib or Cediranib for Alveolar Soft Part Sarcoma</span><br /> <br />Sponsored by: National Cancer Institute (NCI)<br /> <br />Information provided by: National Institutes of Health Clinical Center (CC)<br />ClinicalTrials.gov Identifier: NCT01391962<br /> <br />Alveolar soft part sarcoma (ASPS) is a rare, highly vascular tumor accounting for less than 1% of soft tissue sarcomas. There is no effective systemic treatment for patients with metastatic ASPS. Little is known with regards to relevant molecular markers as potential therapeutic targets. Cediranib (AZD2171) and sunitinib (SU011248), oral small molecule inhibitors of VEGF receptor tyrosine kinases, are showing preliminary evidence of activity in patients with ASPS.<br /><br /><span style="font-weight:bold;">Objective:</span><br /><span style="font-weight:bold;">Part I: </span>Determine the objective response rate (ORR) of single-agent cediranib and single-agent sunitinib malate in patients with advanced ASPS.<br /><span style="font-weight:bold;">Part II: </span>Determine the ORR of cediranib in patients who progress on the sunitinib arm, and determine the ORR of sunitinib in patients who progress on the cediranib arm.<br />Determine the progression-free survival (PFS) at 6 months in Part I and in Part II of the study for single-agent cediranib and single-agent sunitinib malate in patients with advanced ASPS.<br />Evaluate gene expression in tumor biopsies obtained at baseline and after treatment (at the Clinical Center, NCI only).<br /><br /><span style="font-weight:bold;">Eligibility:</span><br />· Patients age greater than or equal to 16 years with histologically or cytologically confirmed metastatic ASPS.<br /><br />· Patients must not have received treatment with any VEGF receptor tyrosine kinase inhibitor (e.g., cediranib, sunitinib, pazopanib, sorafenib); however, prior treatment with bevacizumab is allowed.<br /><br /><span style="font-weight:bold;">Contact:</span><br />NCI Referral Office: 1-888-NCI-1937 (ncicssc@mail.nih.gov)<br />or<br />Lauren Powell, Clinical Research Coordinator: 301-451-0992 (lauren.powell@nih.gov)<br />Locations:<br />United States, Maryland- National Institutes of Health Clinical Center, 9000 Rockville Pike, Bethesda, MD.Laurahttp://www.blogger.com/profile/04864907211796588786noreply@blogger.com1tag:blogger.com,1999:blog-5751879701866172936.post-88529343526369519022011-10-20T12:07:00.000-07:002011-10-20T12:10:21.824-07:00Must-Read ArticlesHere are some "must read" articles for newly diagnosed sarcoma patients<br /><br />1. A Guide to the Sarcoma Universe for Those who Have Just Arrived (and the friends & family that support those with cancer) http://sarcomahelp.org/newly_diagnosed.html<br /><br />2. The Importance of Second Opinions for Sarcoma <br />http://sarcomahelp.org/sarcoma_second_opinions.html<br /><br />3. The Importance of Treatment at a Specialty Center for Sarcomas http://sarcomahelp.org/learning_center/articles/sarcoma_centers.html<br /><br />4. Psychological Adaptation, Coping, and Distress in Adult-Onset Soft Tissue Sarcomas http://sarcomahelp.org/coping.html. Although this article deals with adult patients with soft tissue sarcomas, I believe it is extremely helpful for medical teams, patients and caregivers dealing with all types of sarcoma and ages.<br /><br />5. Newly Diagnosed with Sarcoma: A Guide To The Sarcoma Universe<br />sarcomahelp.org<br /><br />6. Guidelines for newly diagnosed sarcoma patients and their families.<br />http://sarcomahelp.org/newly_diagnosed.htmlLaurahttp://www.blogger.com/profile/04864907211796588786noreply@blogger.com1tag:blogger.com,1999:blog-5751879701866172936.post-87841834355467428082011-08-25T10:44:00.000-07:002011-08-25T11:12:34.924-07:00Sarcoma Cup 2011 AUCTIONThe 2011 Sarcoma Cup is THIS WEEKEND, and we could not be more excited for all the fun in store for everyone who is able to come out in support of a great cause.
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<br />In addition to the delicious dinner, scrumptious breakfast, and sailing action, you can also lend your support to sarcoma research by participating in our 2011 Charity Auction. Support the cause and also take home one of many incredible prizes, including Hawaii resort stays, private plane rides, a tour of the Facebook campus, cruises, sailing gear, and more! Check out all the items up for auction this year at <a href="http://beatsarcoma.org/images/beatsarcoma/documents/sarcomacup2011%20auction%20items.pdf">this link</a>.
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<br />If you're not able to join us in person for the Sarcoma Cup fun, you can call (415) 200-7309 to broker your bid for the charity auction.
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<br />We're looking forward to seeing many sailors and non-sailors this weekend for great food and sailing fun. For more information or to buy tickets for Saturday dinner or Sunday breakfast, visit <a href="http://www.sarcomacup.org">http://www.sarcomacup.org</a>. Laurahttp://www.blogger.com/profile/04864907211796588786noreply@blogger.com0tag:blogger.com,1999:blog-5751879701866172936.post-75424992276457864282011-08-10T15:39:00.000-07:002011-08-10T15:42:28.048-07:00Announcing the 2011 Sarcoma Cup: Aug. 27-28The Sarcoma Cup (www.sarcomacup.org) is a charity fund-raiser and celebration of the sailing life that features great racing, excellent dockside activities, and support for a very worthy cause. All proceeds beyond costs will go towards research for a cure for Sarcoma, the 'forgotten cancer' - and we will strive to cover all costs through some form of sponsorship. The Sarcoma Cup trophy itself was custom-made for the event and donated by Jerry Kermode, a world-class woodworking master.
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<br />All one-design classes and PHRF racers are invited to this event. Multihulls are welcome on Sunday. The regatta will be governed by the Racing Rules of Sailing (2009-2012). Good Karma, prizes and trophies given for charity donations and exceptional sailing!
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<br />The event organizer is the IRS-recognized 501(3)c nonprofit BeatSarcoma and your host is the Berkeley Yacht Club. Many other local orgs are pitching in to help run the event, including the Berkeley Marina, Richmond Yacht Club, and South Beach Yacht Club. See our creditspage for a more complete list.
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<br />We believe that it's possible to further a charitable cause in a highly efficient manner while still providing a great experience to participants and volunteers. The details of BeatSarcoma financial policies are spelled out on their website, but the short version for the Sarcoma Cup is: All net proceeds of this event go straight to the cause. There are no deductions for BeatSarcoma, Inc. expenses such as salaries, stipends, etc. Event expenses do not include compensation of BeatSarcoma insiders for their time or efforts. Event and organization staff are volunteers.
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<br />For more information and to register, visit www.sarcomacup.org. Then join us on August 27-28 for two days of great racing and fabulous dockside activities! All net proceeds of this event go straight to the cause.
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<br />-Winner of the cup will win a free on the water rig tuning offered by Easom rigging
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<br />-Awards include gift certificates, sailing items, and various other prizes in addition to the trophies
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<br />-In particular, the J105s will receive
<br />1st prize: $200 Musto gift certificate, redeemable at Pineapple Sails + Musto flag (see below)
<br />2nd prize: $150 Musto gift certificate, redeemable at Pineapple Sails
<br />3rd prize: $50 Musto gift certificate, redeemable at Pineapple Sails
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<br />-Skipper's Packets include:
<br />ocean navigator magazine
<br />sailing world magazine
<br />discount vouchers at KKMI
<br />free massage coupons for skipper and crew
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<br />-Events offer great FREE perks:
<br />free bar: beer and rum punch on Saturday and free wine on Sunday
<br />free massage for all participants!!!!
<br />free coffee and pastries
<br />free live bands:
<br />Blazing Saddles for saturday afternoon
<br />Ukulele Ladies for saturday dinner
<br />Stephanie Teel for saturday party, rocking the house!
<br />Jazz band for Sunday award/dinner
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<br />-Great deals on:
<br />wicking event shirts
<br />gourmet dinner on Saturday night
<br />hearty breakfast on Sunday morning
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<br />-Charity auction include:
<br />cruises and tropical getaways
<br />personal flights
<br />sailing gear
<br />art work
<br />pair of Ultima Boots donated by Dubarry IrelandLaurahttp://www.blogger.com/profile/04864907211796588786noreply@blogger.com0tag:blogger.com,1999:blog-5751879701866172936.post-69925932226409689792011-05-14T13:43:00.000-07:002011-05-14T13:43:29.455-07:0023andMe Sarcoma Community Letter<div style="margin-bottom: 0px; margin-top: 0px;">Genetic research is a numbers game. The more people who contribute to the effort, the more powerful it gets. As our Sarcoma Community grows with more survey responses and genetic data from you and other participants, we learn more about sarcoma and people's responses to treatment.</div><div style="margin-bottom: 0px; margin-top: 0px;"><br />
We are over halfway to our goal of 1,000 active participants and we continue our quest for new discoveries to share. More than 52 percent of our current community members have joined through advocacy groups that have partnered with 23andMe, such as <a href="http://r20.rs6.net/tn.jsp?llr=s4lvzjcab&et=1105467003008&s=92194&e=001qB8nAXQ6ezWA69YPyWKoT0LIVVEhBRtEH1dW0aPCgz4LKLicPvq8OTHx-L5Ck94IAWSXZD54abauNRDEkrsmbdNgM8B9478LvY_6GI2IB_c=" shape="rect" style="color: blue; text-decoration: underline;" target="_blank">ACOR</a>, <a href="http://r20.rs6.net/tn.jsp?llr=s4lvzjcab&et=1105467003008&s=92194&e=001qB8nAXQ6ezXjLNeg0Nh5z3wSVEFQMc4oIFh-UFmRs_b6CezQ16K87jclqaFvq-8_d55inY2slZhyt5q5zT2HR16mYCtYObejiVQG3cl8gBITyKOt4y_Ozg==" shape="rect" style="color: blue; text-decoration: underline;" target="_blank">Sarcoma UK</a>, <a href="http://r20.rs6.net/tn.jsp?llr=s4lvzjcab&et=1105467003008&s=92194&e=001qB8nAXQ6ezWsA8ab_Vypr00qNO9a_oh2v5pK6hgUY8yKUzD0HNA3gAPX_DmS_eR1_umvikel8CF1m-5lvrBYG1USX5ANWx3Xoxcw2qmLs7SRXnWZbrIMkXgixD26e95EuT-K2VavOOk=" shape="rect" style="color: blue; text-decoration: underline;" target="_blank">Sarcoma Alliance</a>, and <a href="http://r20.rs6.net/tn.jsp?llr=s4lvzjcab&et=1105467003008&s=92194&e=001qB8nAXQ6ezWFhJRwOVSHBnbQPPPnkEkHBSmgfBznN5vw1inFxBv_vn06gp-Vm9thmlBwHzG54HCleMo0zTaLiaRT6B5dzuxhO1uwGhJ4WucFl4BKQrIbaw==" shape="rect" style="color: blue; text-decoration: underline;" target="_blank">Beat Sarcoma</a>. Others have learned about the Sarcoma Research Initiative through Yahoo groups, sarcoma blogs, social networking sites, friends, and visits to the <a href="http://r20.rs6.net/tn.jsp?llr=s4lvzjcab&et=1105467003008&s=92194&e=001qB8nAXQ6ezXfbq9kspBAJM0NdGbe9_j9QMZ3SIDU2-FNR0-dBQ4AJrkzl0PuzqiEN0xP0_gv9QLIu3gGpUesXl06aEL9IW_oeXYjpyfperst30Qwa2DdkQ==" shape="rect" style="color: blue; text-decoration: underline;" target="_blank">23andMe website</a>. In the last two months, over 100 new Sarcoma Community members have claimed their kits and been genotyped. More than 350 members have already taken the <a href="http://r20.rs6.net/tn.jsp?llr=s4lvzjcab&et=1105467003008&s=92194&e=001qB8nAXQ6ezUv-av8PZy_uva6NTvtF3eas-xnL9vpUETNdK7vBrYDfZW-ytOF2WUI-zeU9nCe1ay3T4gH585uNfpnzsIiMlEaT20P5QERQ_Q4KvNZYA7QGelv-Qtp2CvyW2O-e_dMS0KrHPhpGk7lajmukjzp434s" shape="rect" style="color: blue; text-decoration: underline;" target="_blank">sarcoma survey</a> -- we have received over 80 new responses since our last update in early March. Thank you all for the support and contribution to this study.<br />
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Our community growth is exciting, but we still have a long way to go to reach 1,000 members. What is the critical number needed to reach a breakthrough? 600 participants? 800? 1,000? Our 23andMe scientists continuously look at the data, searching for a better understanding of the genetic components of sarcoma and its treatment. While we continue on our quest for discoveries, we ask for your help to spread the word to sarcoma patients worldwide. The link to share is: <a href="http://r20.rs6.net/tn.jsp?llr=s4lvzjcab&et=1105467003008&s=92194&e=001qB8nAXQ6ezWEtGWc6l2Ua75Jr7viTMLFhkxRnv3FBFFCe5U4BrctYg1uPK2CJv_MIjTDwZWlASatO9wcYozqIQhzDYt8Wwta-tdAaP7hWJ9rj8rjXPYzBPDTo0u19mhE" shape="rect" style="color: blue; text-decoration: underline;" target="_blank">http://www.23andme.com/sarcoma</a><wbr></wbr>.<br />
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Our goal is to feature at least one sarcoma event or patient story in each newsletter. Thank you to <a href="http://r20.rs6.net/tn.jsp?llr=s4lvzjcab&et=1105467003008&s=92194&e=001qB8nAXQ6ezXtqgLAnURetBvyvLgYCDQuO6hArsHGOxQCQMyB-afbxdwCPTPbKplGR1Wpsrm17m3seep1ja9uPixQEWZupsC6_8PQh4gMtioniMgMs1AMlA==" shape="rect" style="color: blue; text-decoration: underline;" target="_blank">National Leiomyosarcoma Foundation</a> (NLMSF) President Joni Fixel for sharing news from her organization's annual meeting with the 23andMe Sarcoma Community. </div><div style="margin-bottom: 0px; margin-top: 0px;"><br />
</div><div style="color: grey; margin-bottom: 0px; margin-left: 30px; margin-top: 0px;">Last month, the National Leiomyosarcoma Foundation (NLMSF) hosted its annual membership meeting in Branson, MO from April 7-9, 2011. It was a wonderful weekend of sharing, caring and learning about advances in the research funded by the NLMSF. On Thursday evening attendees met for a night to meet and share with each other. This was an opportunity to renew old friendships and make new ones. On Friday we heard from one of the researchers and a nutritionist who works with cancer patients. In the afternoon, attendees were offered an opportunity to tour the College of the Ozarks (also known as Hard Work U) where college students work instead of paying tuition. On Saturday morning the Annual Membership meeting took place. Additional presentations were given by the doctors where the foundation funds the research. Members were able to ask questions directly of the research doctors and able to understand this rare cancer. An update was given on the accomplishments of the NLMSF in the past year and the goals for the upcoming year. New Board members were announced and introduced to the membership. Throughout the weekend, information about 23andMe was given out and available for all attendees. For more information go to <a href="http://r20.rs6.net/tn.jsp?llr=s4lvzjcab&et=1105467003008&s=92194&e=001qB8nAXQ6ezXtqgLAnURetBvyvLgYCDQuO6hArsHGOxQCQMyB-afbxdwCPTPbKplGR1Wpsrm17m3seep1ja9uPixQEWZupsC6_8PQh4gMtioniMgMs1AMlA==" shape="rect" style="color: blue; text-decoration: underline;" target="_blank">www.nlmsf.org</a>. </div><div style="color: grey; margin-bottom: 0px; margin-left: 30px; margin-top: 0px;"><br />
</div><div align="right" style="color: #989898; margin-bottom: 0px; margin-left: 30px; margin-top: 0px; text-align: right;"><span style="color: grey;"><em>- Joni M. Fixel, President NLMSF</em></span> </div><div align="right" style="color: #989898; margin-bottom: 0px; margin-left: 30px; margin-top: 0px; text-align: right;"><br />
</div><div style="color: black; margin-bottom: 0px; margin-top: 0px;"><span>If you have an event or story to share for an upcoming newsletter, we would love to hear it! Also, we value your feedback about your experiences with the Sarcoma Community and welcome your suggestions as to what you would like to see from us. Please email information or questions to <a href="mailto:sarcoma-help@23andme.com" shape="rect" style="color: blue; text-decoration: underline;" target="_blank">sarcoma-help@23andme.com</a>. Thank you!</span></div><br />
Until next time...<br />
The 23andMe Research TeamNathalie Criou Racinghttp://www.blogger.com/profile/09548331255173461892noreply@blogger.com0tag:blogger.com,1999:blog-5751879701866172936.post-18008474421520894132011-02-27T19:20:00.000-08:002011-02-27T19:20:09.658-08:0023andMe announces the appointment of a Sarcoma Medical Advisory Committee<h6 class="uiStreamMessage" data-ft="{"type":"msg"}"><span class="messageBody">This week 23andMe also announced the creation of an Independent Sarcoma Scientific Advisory Committee with the appointment of leading researchers and clinicians detailed below. To learn more, please visit 23andMe's <a href="http://spittoon.23andme.com/2011/01/25/23andme-achieves-milestone-in-building-sarcoma-research-community-and-announces-appointment-of-sarcoma-scientific-advisory-committee/#more-8394">Blog</a></span></h6><h6 class="uiStreamMessage" data-ft="{"type":"msg"}"><span class="messageBody"> </span></h6>Nathalie Criou Racinghttp://www.blogger.com/profile/09548331255173461892noreply@blogger.com0tag:blogger.com,1999:blog-5751879701866172936.post-67954976836400054342011-02-27T19:15:00.000-08:002011-02-27T19:15:08.615-08:0023andMe Sarcoma Community Reaches 500 - BeatSarcoma Founder shares her interest in the program<span style="border-collapse: collapse; font-family: arial,sans-serif; font-size: 13px;"><div class="MsoNormal" style="margin: 0px;">There <b>is</b> strength in numbers. 23andMe is well on its way to achieving the 1,000 person Sarcoma Community milestone. </div><div class="MsoNormal" style="margin: 0px;">We have over 500 individuals who have joined our sarcoma group from all over the world and with ties to several different patient organizations. The potential of this community to make a difference in the understanding of sarcoma and the development of the effective therapies is enormous. The value in research comes from <i><b>you</b></i>, from individuals with sarcoma sharing with us your genetic information and survey responses. </div><div class="MsoNormal" style="margin: 0px;"><br />
</div><div class="MsoNormal" style="margin: 0px;">We need your help in spreading the word about our 23andMe Sarcoma Community. If you are part of any sarcoma online forums, advocacy groups, or social networking sites, please let your community know about our research efforts at 23andMe. The link to share is:<a href="http://www.23andme.com/sarcoma" style="color: #0065cc;" target="_blank">www.23andme.com/sarcoma</a>. Thank you!</div><div class="MsoNormal" style="margin: 0px;"><br />
</div><div class="MsoNormal" style="margin: 0px;">Nathalie Criou, sarcoma survivor and founder of <a href="http://www.beatsarcoma.org/" style="color: #0065cc;" target="_blank">BeatSarcoma</a>, has been instrumental in the 23andMe Sarcoma Community outreach effort. Please read on to learn more about Nathalie's story:</div><div class="MsoNormal" style="margin: 0px;"><br />
</div><div class="MsoNormal" style="margin: 0px;"><span style="font-family: Arial; font-size: 11pt;"><i>I was diagnosed with sarcoma in late 2006, and spent most of 2007 in treatment for the disease. After my diagnosis, I was struck by how little was known about sarcoma and how difficult it was to find people in my situation. The local oncologists referred me to sarcoma center specialists - however these world specialists had very little understanding of the disease themselves and even an accurate diagnosis was hard to find!</i></span></div><div class="MsoNormal" style="margin: 0px;"><br />
</div><div class="MsoNormal" style="margin: 0px;"> <span style="font-family: Arial; font-size: 11pt;"><i>I received 8 different sarcoma diagnoses and 7 different treatment recommendations. I spent hours researching published papers on sarcoma to help me decide on a treatment path. I realized that most studies were not significant because the number of enrolled patients averaged about 3...There was no way to gauge how *I* would respond to any particular approach. My physicians referred to my treatments as 'experimental', 'unproven'. I felt like anything would be a big shot in the dark...and I probably had only one shot...</i></span></div><div class="MsoNormal" style="margin: 0px;"><br />
</div><div class="MsoNormal" style="margin: 0px;"> <span style="font-family: Arial; font-size: 11pt;"><i>Research in this field is trailing that of other cancers, yet sarcoma represents 20% of all childhood cancers, pointing at some genetic causes that could never be established through a lack of scalable research programs. This situation was unacceptable to me and I created a nonprofit, <a href="http://www.beatsarcoma.org/" style="color: #0065cc;" target="_blank">BeatSarcoma</a>, as a vehicle for change. When 23andMe approached me with their idea of building a sarcoma community and free large-scale research program, I was thrilled. It addressed exactly the two most critical needs of the sarcoma community with a format that is perfect for our scattered group. Sarcoma research must be innovative, as traditional research formats have not yielded results so far. 23andMe embodies this spirit of innovation.</i></span></div><div class="MsoNormal" style="margin: 0px;"><br />
</div><div class="MsoNormal" style="margin: 0px;"> <span style="font-family: Arial; font-size: 11pt;"><i>23andMe is eager to work with sarcoma specialists to drive toward the best possible results and has actively pursued partnerships with the world-leading experts. I immediately signed up to help in my own little ways and I will continue to do anything I can to support this effort. I really want this program to succeed so we can further our understanding of sarcoma. I trust that the model can be replicated over other cases of rare diseases.</i></span></div><div class="MsoNormal" style="margin: 0px;"><br />
</div><div class="MsoNormal" style="margin: 0px;"> <span style="font-family: Arial; font-size: 11pt;"><i>Please help us spread the word through your local sarcoma organization, physicians and fellow patients or survivors. The success of this program rests on our shoulders!</i></span></div><div class="MsoNormal" style="margin: 0px;"><br />
</div><div class="MsoNormal" style="margin: 0px;"> <span style="font-family: Arial; font-size: 11pt;"><i>Nathalie Criou</i></span></div><div class="MsoNormal" style="margin: 0px;"><span style="font-family: Arial; font-size: 11pt;"><i>Founder BeatSarcoma</i></span></div><div class="MsoNormal" style="margin: 0px;"><span style="font-family: Arial; font-size: 11pt;"><a href="http://www.beatsarcoma.org/" style="color: #0065cc;" target="_blank"><i>www.beatsarcoma.org</i></a></span></div><div class="MsoNormal" style="margin: 0px;"><br />
</div><div class="MsoNormal" style="margin: 0px;"> Help us with the fight against sarcoma. Join the 23andMe Sarcoma Community.</div></span>Nathalie Criou Racinghttp://www.blogger.com/profile/09548331255173461892noreply@blogger.com0tag:blogger.com,1999:blog-5751879701866172936.post-23967862607796691362011-02-18T11:38:00.000-08:002011-02-18T11:38:14.278-08:00Research Update - sarcoma<div class="MsoNormal"><b>For Release Monday February 14, 2011 Noon EST</b></div><div class="MsoNormal">For information contact: Charles Keller MD (503-494-1210, <a href="mailto:keller@ohsu.edu" target="_blank">keller@ohsu.edu</a>), or</div><div class="MsoNormal"><br />
</div><div class="MsoNormal"> <wbr></wbr> <wbr></wbr> Tamara Hargens-Bradley, </div><div class="MsoNormal" style="margin-left: 1.5in; text-indent: 0.5in;">Senior Communications Specialist</div><div class="MsoNormal" style="margin-left: 1.5in; text-indent: 0.5in;">Oregon Health & Science University/Doernbecher Children's Hospital </div><div class="MsoNormal" style="margin-left: 1.5in; text-indent: 0.5in;"> (Office): 503-494-8231 (Fax): 503-494-8246 <a href="mailto:hargenst@ohsu.edu" target="_blank">hargenst@ohsu.edu</a> </div><div class="MsoNormal"><br />
</div><div class="MsoNormal"><span style="color: black;">In a report published today as the Featured Article in the journal</span> <a href="http://www.cell.com/cancer-cell/" target="_blank"><b><i>Cancer Cell</i></b></a>, investigators at the <a href="http://www.ohsu.edu/xd/health/services/doernbecher/index.cfm" target="_blank">Oregon Health & Science University</a> (OHSU) reveal interesting new findings for a kind of cancer called sarcoma. The most common sarcoma of children occurs in the muscle and has an appearance of muscle. In adults, sarcomas are often even more primitive appear. In their report, the <a href="http://kellerlabblog.blogspot.com/" target="_blank">Keller Laboratory</a> reveals that childhood and adult sarcomas are linked in their biology, mutations and the cells from which these tumors first start.</div><div class="MsoNormal"><br />
</div><div class="MsoNormal">Childhood muscle cancer, or rhabdomyosarcoma, is a condition that when spread throughout the body leads to a low survival rate – only 20 – 40%. In adults with soft tissue sarcomas, survival can be even lower. Now, for the first time, scientists and doctors know from where these tumors arise and what drives them to grow and spread. Armed with this new information, the researchers in the <a href="http://pcb-ohsu.blogspot.com/" target="_blank">Pediatric Cancer Biology Program</a> at OHSU are looking for ways to stop or eradicate these sarcomas.</div><div class="MsoNormal"><br />
</div><div class="MsoNormal">“A commonly held belief is that cancers should be cut out, burned out or killed. There is a fourth option – to have cancer cells choose to become normal cells, in this case muscle cells,” says Dr. Keller, who led the study. “A least for a subset of patients, possibly the ones with hereditary cancer, one approach suggested by our research might be to administer drugs that muscle cancers to convert into non-cancerous muscle fibers. This is a minority opinion, but one held by a small group of careful scientists throughout the US and abroad.”</div><div class="MsoNormal"><br />
</div><div class="MsoNormal">The survival rate for childhood muscle cancer that has spread has remained unchanged for more than 40 years. It has reached the point that increasing the intensity of chemotherapy, radiation or surgery is no longer having any improved effect. A novel approach taken by Keller and his colleagues in the laboratory as well as in new clinical trials is to use non-chemotherapy medicines to inhibit “molecular targets” such as growth factor receptors in this disease. Suman Malempati, Director of the Oncology <a href="http://pcb-ohsu.blogspot.com/2010/11/doernbecher-childrens-hospital.html" target="_blank">Developmental Therapeutics Program</a> at OHSU’s Doernbecher Children’s Hospital, is the lead on a national clinical trial of one such growth factor inhibitor. This study is the first trial to incorporate a molecularly-targeted drug into a clinical trial for childhood muscle cancer for the <a href="http://www.curesearch.com/" target="_blank">Children’s Oncology Group/Curesearch</a>, a nationwide network of hospitals, doctors and leading scientists that develop new treatments for childhood cancer. This type of therapy tailored to a cancer’s mutation was first pioneered at OHSU by DeBakey-Lasker Award Recipient, <a href="http://www.laskerfoundation.org/awards/2009_c_description.htm" target="_blank">Dr. Brian J. Druker</a>. Dr. Druker and his colleagues developed a non-chemotherapy pill, Gleevec, which when taken each day causes a form of blood cancer, chronic myelogenous leukemia, to remain dormant indefinitely. Personalized Cancer Care for children and adults is the primary mission of the <a href="http://www.ohsu.edu/xd/health/services/cancer/" target="_blank">Knight Cancer Institute</a> at OHSU. </div><div class="MsoNormal"><br />
</div><div class="MsoNormal"><br />
</div><div class="MsoNormal"><span style="color: black; font-size: 10pt;">--</span><span style="color: black; font-size: 12pt;"></span></div><div class="MsoNormal"><span style="color: black; font-size: 10pt;">Charles Keller, M.D. Associate Professor Leader, Pediatric Cancer Biology Program<br />
Pape' Family Pediatric Research Institute, Department of Pediatrics, Oregon Health & Science University<br />
Tel 503.494.1210 Fax 503.418.5044 <a href="mailto:keller@ohsu.edu" target="_blank"><span style="color: blue;">keller@ohsu.edu</span></a> </span><span style="color: black; font-size: 12pt;"></span></div><div class="MsoNormal"><br />
</div><div class="MsoNormal"><span style="color: black; font-size: 10pt;">our lab blog: <a href="http://www.kellerlabblog.blogspot.com/" target="_blank"><span style="color: blue;">KellerLabBlog.blogspot.com</span></a> <wbr></wbr> </span></div><div class="MsoNormal"><br />
</div><div class="MsoNormal"><span style="font-size: 10pt;">our Pediatric Cancer Biology Program:<span style="color: #1f497d;"> <a href="http://pcb-ohsu.blogspot.com/" target="_blank"><span style="color: blue;">http://pcb-ohsu.blogspot.com/</span></a> <wbr></wbr> </span></span></div><div class="MsoNormal"><br />
</div><span style="font-size: 10pt;">our high risk/high reward therapeutics initiative:<span style="color: #1f497d;"> <a href="http://pptiohsu.blogspot.com/" target="_blank"><span style="color: blue;">http://pptiohsu.blogspot.com/</span></a> </span></span>Nathalie Criou Racinghttp://www.blogger.com/profile/09548331255173461892noreply@blogger.com0tag:blogger.com,1999:blog-5751879701866172936.post-35956049436986446952010-10-11T22:54:00.000-07:002010-10-11T22:54:56.443-07:00BeatSarcoma makes a $20,000 research gift to UCSFBeatSarcoma is very pleased to announce that it just made a $20,000 research gift to UCSF sarcoma research program, thus adding another formal program to the list of sarcoma programs it supports.<br />
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UCSF recently created a sarcoma research group and has worked closely with BeatSarcoma to identify the most impactful projects to fund. BeatSarcoma's Medical Advisory Board reviews all proposals for funding and makes a recommendation to the BeatSarcoma Board of Directors.<br />
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<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiSiokxA79KvdMZoBbzBi7qLzaAHU6IJrvyZtxFWMVJ4PcbGv1Iwp0nWIp-qwQDpFCtHXzRv9Viw5nlmab85PfSWU18jS8eYZdfpntEdbmDS8BFEVRnDqiagwIe8X8kXoCNKbaHoTdSEObw/s1600/IMG_0646.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="300" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiSiokxA79KvdMZoBbzBi7qLzaAHU6IJrvyZtxFWMVJ4PcbGv1Iwp0nWIp-qwQDpFCtHXzRv9Viw5nlmab85PfSWU18jS8eYZdfpntEdbmDS8BFEVRnDqiagwIe8X8kXoCNKbaHoTdSEObw/s400/IMG_0646.JPG" width="400" /> </a></div><div class="separator" style="clear: both; text-align: center;"><span style="font-size: x-small;">From left to right: Nathan Bossett, Nathalie Criou from BeatSarcoma and Dr Eric Nakakura, MD, PhD, UCSF</span></div><br />
The money will help fund UCSF translational research laboratory dedicated to understanding basic mechanisms of sarcoma cancer growth - rapid processing is a key element of tissue collection and critical to the quality of molecular research as any lengthy wait or mishandling could lead to cell degradation and wrong conclusions. The UCSF laboratory benefits from a direct line into the operating room and can fully control the way tissue samples are collected and stored or cultivated, thus ensuring cell biological integrity.<br />
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<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgTiLKfx8HGPKtUWyybfkqYNvCu8-TdeMWt8PloKsUI3he57b9shkzmq9BPbuIPttLkrngOIwx3lRxnbdONhYMAlrypCSk6aDaAuUYeE-KH95q3F6J9weef96GHjhCCYhSOhzSXcgj20gcW/s1600/IMG_0645.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="400" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgTiLKfx8HGPKtUWyybfkqYNvCu8-TdeMWt8PloKsUI3he57b9shkzmq9BPbuIPttLkrngOIwx3lRxnbdONhYMAlrypCSk6aDaAuUYeE-KH95q3F6J9weef96GHjhCCYhSOhzSXcgj20gcW/s400/IMG_0645.JPG" width="300" /></a></div><div style="text-align: center;"><span style="font-size: x-small;">Dr Nakakura, MD, PhD in the UCSF translation laboratory</span></div><br />
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Dr Nakakura, MD PhD, the lead investigator and a cancer surgeon specializing in the treatment of soft tissue sarcoma says: "I'd like to offer my sincere thanks to BeatSarcoma for its tremendous generosity. Please know that our ongoing partnership has a direct impact on our sarcoma studies that we hope will benefit patients in the near future. We greatly appreciate the support!"Nathalie Criou Racinghttp://www.blogger.com/profile/09548331255173461892noreply@blogger.com0tag:blogger.com,1999:blog-5751879701866172936.post-14241030596484836782010-10-09T18:35:00.000-07:002010-10-09T18:35:08.217-07:00Dr. George Demetri MD and Dr. Robert Maki, MD, PhD join BeatSarcoma's Medical Advisory BoardBeatSarcoma feels very honored to count Dr. George Demetri, MD of Dana-Farber and Dr Robert Maki, MD, PhD of Memorial-Sloan Kettering on its Medical Advisory Board. Together with Dr Amreen Husain, MD of Stanford University, they will advise the BeatSarcoma Board on the best way to disburse research funds.<br />
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Dr George Demetri is Director of the Center for Sarcoma and Bone Oncology; Senior Vice President for Experimental Therapeutics; Director of the Ludwig Center at Dana-Farber/Harvard Cancer Center; executive director for Clinical and Translational Research at the Ludwig Institute for Cancer Research. and Associate Professor of Medicine, Harvard Medical School on its Medical Advisory Board.<br />
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Dr Robert Maki is a medical oncologist and co-leader of the adult Sarcoma Disease Management Team at Memorial Sloan-Kettering Cancer Center with a special interest in new therapies for the treatment of soft tissue and bone sarcomas, particularly metastatic disease. He is also trying to develop vaccines and other forms of immunological therapy against sarcomas to "teach" the immune system to attack tumor cells but not normal cells.<br />
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Please join us in welcoming both of them to our community!<br />
<hr style="clear: both;" />Nathalie Criou Racinghttp://www.blogger.com/profile/09548331255173461892noreply@blogger.com0tag:blogger.com,1999:blog-5751879701866172936.post-75972655136283818852010-10-03T23:13:00.000-07:002010-10-04T15:58:47.614-07:002010 Sarcoma Cup<div class="MsoNormal"><span style="font-family: Arial; font-size: 11pt;">The 2010 Sarcoma Cup, the 3<sup>rd</sup> annual sailing regatta organized by BeatSarcoma took place on August 28<sup>th</sup> and 29<sup>th</sup> at the Berkeley Yacht Club. Over 84 boats registered in what has become a long-awaited event in the Bay Area sailing community. Saturday’s was a buoy race<st1:street st="on"><st1:address st="on"></st1:address></st1:street>, and Sunday’s was a long distance race 'Islands of Hope' - both on the San Francisco Bay.<o:p></o:p></span></div><div class="MsoNormal"><span style="font-family: Arial; font-size: 11pt;"><o:p> </o:p></span></div><div class="MsoNormal"><br /></div><div class="MsoNormal"><span style="font-family: Arial; font-size: 11pt;">This year, the sailing regatta grossed over $32,000 to benefit BeatSarcoma, the organizing nonprofit that raises funds for sarcoma cancer research, read more <a href="http://www.beatsarcoma.org">here</a>. This successful event had changed its location from the previous two years at the Richmond Yacht Club. The winner of the Cup was the Wabbit Mr McGregor from the Richmond Yacht Club - the Sarcoma Cup trophy will therefore remain at the Richmond Yacht Club until the next event!</span></div><div class="MsoNormal"><span style="font-family: Arial; font-size: 11pt;"></span></div><div class="MsoNormal"><span style="font-family: Arial; font-size: 11pt;"></span></div><div class="MsoNormal"><span style="font-family: Arial; font-size: 11pt;"><o:p></o:p></span></div><div class="MsoNormal"><span style="font-family: Arial; font-size: 11pt;"><o:p> </o:p></span></div><div class="MsoNormal"><br /></div><div class="MsoNormal"><span style="font-family: Arial; font-size: 11pt;">This year also featured a new website, check out <a href="http://www.sarcomacup.org/">www.sarcomacup.org</a>, which some say it’s so alive it entices even those who normally do not sail to do so more often.</span></div><div class="MsoNormal"><br /></div><div class="MsoNormal"><span style="font-family: Arial; font-size: 11pt;"> <o:p></o:p></span></div><div class="MsoNormal"><span style="font-family: Arial; font-size: 11pt;"><o:p> </o:p></span></div><div class="MsoNormal"><span style="font-family: Arial; font-size: 11pt;">Here are some summaries:<o:p></o:p></span></div><div class="MsoNormal"><span style="font-family: Arial; font-size: 11pt;"><o:p> </o:p></span></div><div class="MsoNormal"><span class="apple-style-span"><b><span style="color: black; font-family: Arial; font-size: 11pt;">Results:</span></b></span><span style="color: black; font-family: Arial; font-size: 11pt;"><br /><span class="apple-style-span">Saturday results:</span><span class="apple-converted-space"> </span><span class="apple-style-span"><a href="http://www.regattanetwork.com/clubmgmt/applet_regatta_results.php?regatta_id=3172" target="_blank"><span style="color: #2a5db0;">http://www.regattanetwork.com/clubmgmt/applet_regatta_results.php?regatta_id=3172</span></a></span><br /><span class="apple-style-span">Sunday results:</span><span class="apple-converted-space"> </span><span class="apple-style-span"><a href="http://www.regattanetwork.com/clubmgmt/applet_regatta_results.php?regatta_id=3175" target="_blank"><span style="color: #2a5db0;">http://www.regattanetwork.com/clubmgmt/applet_regatta_results.php?regatta_id=3175</span></a></span><br /><span class="apple-style-span">Alerion and J105 Results:</span><span class="apple-converted-space"> </span><span class="apple-style-span"><a href="http://www.regattanetwork.com/clubmgmt/applet_regatta_results.php?regatta_id=3172" target="_blank"><span style="color: #2a5db0;">http://www.regattanetwork.com/clubmgmt/applet_regatta_results.php?regatta_id=3172</span></a></span><br /><br /><span class="apple-style-span"><b>Photos:</b></span><br /><span class="apple-style-span">On the water photos:</span><span class="apple-converted-space"> </span><span class="apple-style-span"><a href="http://photo.beatsarcoma.org/Events/SarcomaCup-2010on-water" target="_blank"><span style="color: #2a5db0;">http://photo.beatsarcoma.org/Events/SarcomaCup-2010on-water</span></a></span><br /><span class="apple-style-span">Shore photos:</span><span class="apple-converted-space"> </span><span class="apple-style-span"><a href="http://photo.beatsarcoma.org/Events/SarcomaCup-2010/13526778_QQ2oh#986119627_6dP42" target="_blank"><span style="color: #2a5db0;">http://photo.beatsarcoma.org/Events/SarcomaCup-2010/13526778_QQ2oh#986119627_6dP42</span></a></span><br /><span class="apple-style-span">Note: we will be making calendars with these photos - they will be available for sale during the holiday season. Ping us if you'd like to see a calendar made out w/ photos of your boat!</span><br /><br /><span class="apple-style-span"><b>News coverage:</b></span><br /><span class="apple-style-span">Latitude 38 Coverage:</span><span class="apple-converted-space"> </span><span class="apple-style-span"><a href="http://www.latitude38.com/lectronic/lectronicday.lasso?date=2010-08-30&dayid=473" target="_blank"><span style="color: #2a5db0;">http://www.latitude38.com/lectronic/lectronicday.lasso?date=2010-08-30&dayid=473</span></a></span><br /><span class="apple-style-span">Norcal sailing writeup:</span><span class="apple-converted-space"> </span><span class="apple-style-span"><a href="http://www.norcalsailing.com/entries/2010/09/01/sarcomacup.html" target="_blank"><span style="color: #2a5db0;">http://www.norcalsailing.com/entries/2010/09/01/sarcomacup.html</span></a></span><br /><span class="apple-style-span">Pressure Drop writeup:</span><span class="apple-converted-space"> </span><span class="apple-style-span"><a href="http://pressure-drop.us/forums/content.php?605-5-70-s-Rock-The-Sarcoma-Cup" target="_blank"><span style="color: #2a5db0;">http://pressure-drop.us/forums/content.php?605-5-70-s-Rock-The-Sarcoma-Cup</span></a></span><br /><span class="apple-style-span">Pressure Drop Video:</span><span class="apple-converted-space"> </span><span class="apple-style-span"><a href="http://www.pressure-drop.us/forums/content.php?615-Sarcoma-Cup-Gets-Downright-Sexy" target="_blank"><span style="color: #2a5db0;">http://www.pressure-drop.us/forums/content.php?615-Sarcoma-Cup-Gets-Downright-Sexy</span></a></span><br /><span class="apple-style-span">Pressure Drop Writeup (from a participant):</span><span class="apple-converted-space"> </span><span class="apple-style-span"><a href="http://pressure-drop.us/forums/content.php?619-Sarcoma-Cup-2010-Saturday-Buoy-Racing" target="_blank"><span style="color: #2a5db0;">http://pressure-drop.us/forums/content.php?619-Sarcoma-Cup-2010-Saturday-Buoy-Racing</span></a><o:p></o:p></span></span></div><div class="MsoNormal"><span style="font-family: Arial; font-size: 11pt;"><o:p> </o:p></span></div><div class="MsoNormal"><br /></div><div class="MsoNormal"><span style="font-family: Arial; font-size: 11pt;">Thanks to all of our corporate and private sponsors who made it possible for us to increase our fundraising through raffle, and online and silent auctions, as well as to our dedicated volunteers, who donated their time coordinating the event, manning registration and shirt tables, decorating, cooking, doing water taxi, among other fun duties!<o:p></o:p></span></div><div class="MsoNormal"><span style="font-family: Arial; font-size: 11pt;"><o:p> </o:p></span></div>heidyhttp://www.blogger.com/profile/14546402984385177656noreply@blogger.com0tag:blogger.com,1999:blog-5751879701866172936.post-4557512718275375552010-07-06T10:53:00.000-07:002010-07-06T21:16:01.890-07:00Sarcoma International Awareness Week - July 17-20<h3 class="UIIntentionalStory_Message" data-ft="{"type":"msg"}" style="font-weight: normal;"><span style="font-size: small;"><span class="UIStory_Message">For July Sarcoma Awareness Week - please wear a BeatSarcoma shirt or swag or simply put a sticker on an existing shirt. Take a picture with the caption 'Team Sarcoma Initiative' and email it to info at beatsarcoma.org. We want to help beat last year's records in terms of participants!!!</span></span></h3><h3 class="UIIntentionalStory_Message" data-ft="{"type":"msg"}" style="font-weight: normal;"><span style="font-size: small;"><span class="UIStory_Message"> We'll create an album that can be linked from the Team Sarcoma page </span></span></h3><div class="UIStoryAttachment UIStoryAttachment_InlineInfo" data-ft="{"type":"attach"}" id=""><div class="UIStoryAttachment_Media UIStoryAttachment_MediaSingle" data-ft="{"type":"media"}"><div class="UIMediaItem"><a href="http://www.beatsarcoma.org/Online_store.html" id="" onmousedown="UntrustedLink.bootstrap($(this), "f35baSbT2Nb7wQGGMB62AWpd1xw", event);" rel="nofollow" target="_blank" title=""></a><br />
<div class="UIMediaItem_Wrapper"><a href="http://www.beatsarcoma.org/Online_store.html" id="" onmousedown="UntrustedLink.bootstrap($(this), "f35baSbT2Nb7wQGGMB62AWpd1xw", event);" rel="nofollow" target="_blank" title=""><img class="img" src="http://external.ak.fbcdn.net/safe_image.php?d=177be13dcb29ec0afd2f722a711a8e9d&w=90&h=90&url=http%3A%2F%2Fwww.beatsarcoma.org%2Fimages%2Fwomen_t_shirt.jpg" /></a></div></div></div><div class="UIStoryAttachment_Info"><div class="UIStoryAttachment_Title"><a href="http://www.beatsarcoma.org/Online_store.html" id="" onmousedown="UntrustedLink.bootstrap($(this), "f35bamFEQY6x8LHCx8yj9OWN_Vw", event);" rel="nofollow" target="_blank">Online store</a> </div></div><div class="UIStoryAttachment_Info"><br />
</div><div class="UIStoryAttachment_Info">Find out more about what is happening in your neighborhood or elsewhere in the world during that week, check <a href="http://www.team-sarcoma.net/">http://www.team-sarcoma.net/</a></div></div>Nathalie Criou Racinghttp://www.blogger.com/profile/09548331255173461892noreply@blogger.com0tag:blogger.com,1999:blog-5751879701866172936.post-49944139977875499592010-04-28T18:55:00.000-07:002010-04-28T19:01:29.760-07:00BeatSarcoma Makes a $5,000 Research Gift to UCSF<div><span class="Apple-style-span" style="font-family: arial, sans-serif; font-size: -webkit-xxx-large; border-collapse: collapse; color: rgb(80, 0, 80); "><p class="MsoNormal" style="margin-top: 0px; margin-right: 0px; margin-bottom: 0px; margin-left: 0px; "><span style="font-family:'Palatino Linotype', serif;"><span class="Apple-style-span" style="font-size: medium; ">BeatSarcoma extended its support of Sarcoma Research to UCSF - as it exceeded its fundraising goals in 2009 and had more funds available than what it had already committed. UCSF has long been treating patients with sarcoma and recently decided to form a sarcoma research group.</span></span><span class="Apple-style-span" style="font-size: medium; "><span></span></span></p><p class="MsoNormal" style="margin-top: 0px; margin-right: 0px; margin-bottom: 0px; margin-left: 0px; "><span><span class="Apple-style-span" style="font-size: medium; "></span></span></p><p class="MsoNormal" style="text-align: left;margin-top: 0px; margin-right: 0px; margin-bottom: 0px; margin-left: 0px; "><span style="font-family:'Palatino Linotype', serif;"><span class="Apple-style-span" style="font-size: medium; ">'We have been discussing sarcoma research since our inception with UCSF and we are extremely pleased to see this development and honored to lend our support to this world-class institution' says Criou, BeatSarcoma President. 'UCSF offers sarcoma research projects that are very much in line with BeatSarcoma's funding philosophy.'</span></span></p></span></div><div><br /></div><a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhnqw81GLFnqXmy8eetO3RJpIsdmq9CKk2DcyS0lAM9KVjVYAzkK-8IOLz0YEJMCPF7x_hu-h_oaXHbabIKiJxn2CyjafMiEI5HtfwLUjqNzMiSHynThDFt3I3Q2IOPljw92kuVnwKAv90X/s1600/the+one.jpg"><img style="text-align: right;display: block; margin-top: 0px; margin-right: auto; margin-bottom: 10px; margin-left: auto; cursor: pointer; width: 400px; height: 300px; " src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhnqw81GLFnqXmy8eetO3RJpIsdmq9CKk2DcyS0lAM9KVjVYAzkK-8IOLz0YEJMCPF7x_hu-h_oaXHbabIKiJxn2CyjafMiEI5HtfwLUjqNzMiSHynThDFt3I3Q2IOPljw92kuVnwKAv90X/s400/the+one.jpg" border="0" alt="" id="BLOGGER_PHOTO_ID_5465373043277119202" /></a><span class="Apple-style-span" style=" border-collapse: collapse; color: rgb(80, 0, 80); font-family:arial, sans-serif;font-size:13px;"><div><p class="MsoNormal" style="text-align: center;margin-top: 0px; margin-right: 0px; margin-bottom: 0px; margin-left: 0px; "><span class="Apple-style-span" style="font-size: medium;"><span class="Apple-style-span" style="font-family:Georgia, serif;color:#000000;"><span class="Apple-style-span" style="border-collapse: separate;"><span class="Apple-style-span" style="font-size: small;">Dr</span><span class="Apple-style-span" style="font-size: small;">. Eric Nakakura of UCSF, Nathalie Criou and Nathan Bossett of BeatSarcoma</span></span></span></span></p><p class="MsoNormal" style="margin-top: 0px; margin-right: 0px; margin-bottom: 0px; margin-left: 0px; "><span class="Apple-style-span" style="font-family:Georgia, serif;color:#000000;"><span class="Apple-style-span" style="border-collapse: separate; font-size: medium;"><br /></span></span></p></div><div><p class="MsoNormal" style="margin-top: 0px; margin-right: 0px; margin-bottom: 0px; margin-left: 0px; "><span><span class="Apple-style-span" style="font-family:'times new roman';"><span class="Apple-style-span" style="font-size: medium;">Dr. Nakakura is a cancer surgeon who treats patients with soft tissue sarcoma. He also runs a translational research laboratory dedicated to understanding basic mechanisms of cancer growth that might be exploited to better treat patients. With the help of funding from BeatSarcoma, Dr. Nakakura and his laboratory will investigate the role of a critical growth and signaling pathway in human sarcoma--the mTOR pathway. His group will determine the expression and activity of mTOR pathway components in a diverse collection of human soft tissue sarcoma samples. They would then investigate the efficacy of mTOR inhibition on sarcoma growth in vitro and in vivo.</span></span><span class="Apple-style-span" style="font-size: medium;"> </span></span></p><p class="MsoNormal" style="margin-top: 0px; margin-right: 0px; margin-bottom: 0px; margin-left: 0px; "><span class="Apple-style-span" style="font-family:'times new roman', sans-serif;"><span class="Apple-style-span" style="font-size: medium;"><br /></span></span></p><p class="MsoNormal" style="margin-top: 0px; margin-right: 0px; margin-bottom: 0px; margin-left: 0px; "><span><span class="Apple-style-span" style="font-size: medium;"> </span></span></p><p class="MsoNormal" style="margin-top: 0px; margin-right: 0px; margin-bottom: 0px; margin-left: 0px; "><span><span style="font-family:'Palatino Linotype', serif;"><span class="Apple-style-span" style="font-size: medium;">Dr. Nakakura supported BeatSarcoma's 2010 Fun Run on April 25 noting 'it means a lot to me to hear first hand the motivation for sarcoma research.'</span></span></span></p></div></span>Nathalie Criou Racinghttp://www.blogger.com/profile/09548331255173461892noreply@blogger.com0tag:blogger.com,1999:blog-5751879701866172936.post-70758021229727605642010-04-27T22:23:00.000-07:002010-04-27T22:24:32.137-07:00Submit an entry to the 'Everyday Sarcoma Hero' project<span class="Apple-style-span" style="font-family: 'lucida grande', tahoma, verdana, arial, sans-serif; font-size: 11px; color: rgb(51, 51, 51); "><div class="UIIntentionalStory_Header"><h3 class="UIIntentionalStory_Message" ft="{"type":"msg"}" style="font-size: 13px; color: rgb(51, 51, 51); margin-top: 0px; margin-right: 0px; margin-bottom: 0px; margin-left: 0px; padding-top: 0px; padding-right: 0px; padding-bottom: 0px; padding-left: 0px; font-weight: normal; overflow-x: hidden; overflow-y: hidden; "><span class="UIStory_Message">Submit an entry to the <a href="http://www.team-sarcoma.net/announcements/4564?utm_source=feedburner&utm_medium=email&utm_campaign=Feed%3A+teamsarcoma+%28Team+Sarcoma+Initiative%29">Everyday Sarcoma Heroes project</a>? Everyone who has dealt with sarcoma knows a hero or two. Heroes support, encourage and inspire us in extraordinary ways. Just when we need them most, they are there. They challenge us, comfort us, and give us hope.</span></h3></div><div class="UIStoryAttachment" ft="{"type":"attach"}" id="" style="margin-top: 6px; overflow-x: hidden; overflow-y: hidden; padding-right: 10px; margin-bottom: 5px; "><div class="UIStoryAttachment_Media UIStoryAttachment_MediaSingle" ft="{"type":"media"}" style="float: left; overflow-x: hidden; overflow-y: hidden; padding-right: 10px; "><div class="UIMediaItem"><a href="http://bit.ly/amQ3ND%20" class="" id="" title="" target="_blank" onclick="" rel="nofollow" onmousedown="UntrustedLink.bootstrap($(this), "b75f4", event)" style="cursor: pointer; color: rgb(59, 89, 152); text-decoration: none; "><div class="UIMediaItem_Wrapper" style="overflow-x: hidden; overflow-y: hidden; "><img class="img" src="http://external.ak.fbcdn.net/safe_image.php?d=f3a1e2b88ad273ec929da226c1a6fc70&w=130&h=130&url=http%3A%2F%2Fwww.team-sarcoma.net%2F2010_flair.png" style="border-top-width: 0px; border-right-width: 0px; border-bottom-width: 0px; border-left-width: 0px; border-style: initial; border-color: initial; display: block; " /></div></a></div></div><div class="UIStoryAttachment_Info" style="display: table; "><div class="UIStoryAttachment_Title" style="font-weight: bold; padding-top: 3px; "><a href="http://bit.ly/amQ3ND%20" class="" id="" title="" target="_blank" onclick="" rel="nofollow" onmousedown="UntrustedLink.bootstrap($(this), "b75f4", event)" style="cursor: pointer; color: rgb(59, 89, 152); text-decoration: none; ">Team Sarcoma Initiative » The Team Sarcoma Everyday Heroes Competition</a></div><div class="UIStoryAttachment_Caption" style="color: rgb(128, 128, 128); padding-top: 3px; ">bit.ly</div><div class="UIStoryAttachment_Copy" style="color: rgb(128, 128, 128); padding-top: 3px; ">Everyday Heroes is an effort to honor sarcoma patients and those who have touched the lives of sarcoma patients, and to inspire kindness and supportive action for everyone dealing with sarcoma.</div></div></div></span>Nathalie Criou Racinghttp://www.blogger.com/profile/09548331255173461892noreply@blogger.com1tag:blogger.com,1999:blog-5751879701866172936.post-71678454513085510492010-04-27T20:45:00.001-07:002010-04-27T22:17:56.193-07:00BeatSarcoma 2010 Fun Run<a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEidzYwQ4JNfQ6oDcAO4pr1bGRbAIGz_fcT7PKg0tyAVnPHmPg-Dgw85uHnLSTpxxVegjqGPBYvoS1nCR6X3P7CsLC6KXjUaEQqhKTx8DfY9swOBIzTFFbkFAJBU-ERTG2ayJ3S9_Of9kV0T/s1600/james.jpg"><img style="display:block; margin:0px auto 10px; text-align:center;cursor:pointer; cursor:hand;width: 400px; height: 266px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEidzYwQ4JNfQ6oDcAO4pr1bGRbAIGz_fcT7PKg0tyAVnPHmPg-Dgw85uHnLSTpxxVegjqGPBYvoS1nCR6X3P7CsLC6KXjUaEQqhKTx8DfY9swOBIzTFFbkFAJBU-ERTG2ayJ3S9_Of9kV0T/s400/james.jpg" border="0" alt="" id="BLOGGER_PHOTO_ID_5465029840851678738" /></a><span class="Apple-style-span" style="font-size:small;"><div style="text-align: center;">James - 2nd place - pet category</div></span><div><br /></div><div><span style="font-weight: bold;"><span style="font-weight: normal;"><div style="" align="center">Thank you everyone for coming to our third annual <b>Fun</b> Run! </div> <div style="" align="center">It looks like we have raised more money than in the first two years combined</div> <div style="" align="left"><br /></div> <div style="" align="left">We will triple-check next time we book the venue to avoid buses driving through the course...print a map of the park for our volunteer massage therapist to save him from being lost...put a volunteer with a sign translated into 18 languages at the turnaround point and double up with signs at the beach saying 'if you read this, you have gone too far'...</div> <div style="" align="left"><br /></div> <div style="" align="left">The great news is that people came to run and they did plenty of running, some even ran around for a little while. People came to walk and they walked. Any extra distance did not cost any extra money...Dog came, ate treats, wore cool t-shirts and won prizes. Kids ran with a smile on their face and the sun was out to greet team Millie, team Lauren, team Paul and team Dave.</div><div><div><div style="" align="center"><span class="Apple-style-span" style="font-size:100%;color:#4F4F4F;"><span class="Apple-style-span" style="font-size:12px;"><br /></span></span></div></div></div></span></span></div>Nathalie Criou Racinghttp://www.blogger.com/profile/09548331255173461892noreply@blogger.com1tag:blogger.com,1999:blog-5751879701866172936.post-73373783610772763582010-04-25T19:07:00.000-07:002010-04-25T19:08:04.947-07:00Article about BeatSarcoma's Founder from Pressure Drop<a href="http://www.pressure-drop.us/forums/showthread.php?247-People-Making-A-Difference-This-time-Natalie-Criou-Beat-Sarcoma-Founder">http://www.pressure-drop.us/forums/showthread.php?247-People-Making-A-Difference-This-time-Natalie-Criou-Beat-Sarcoma-Founder</a>Nathalie Criou Racinghttp://www.blogger.com/profile/09548331255173461892noreply@blogger.com0tag:blogger.com,1999:blog-5751879701866172936.post-71887898655547300842010-03-03T18:14:00.000-08:002010-03-03T18:15:03.435-08:00Berkeley Yacht Club will be hosting the 2010 Sarcoma Cup<span class="Apple-style-span" style="font-family: arial, sans-serif; font-size: 13px; border-collapse: collapse; "><p class="MsoNormal" style="margin-top: 0px; margin-right: 0px; margin-bottom: 0px; margin-left: 0px; ">Howdy Sailors –</p><p class="MsoNormal" style="margin-top: 0px; margin-right: 0px; margin-bottom: 0px; margin-left: 0px; "> </p><p class="MsoNormal" style="margin-top: 0px; margin-right: 0px; margin-bottom: 0px; margin-left: 0px; ">In our continuing efforts to provide you with the best possible regatta experience, and after months of top secret meetings with deep-pocketed sponsors, interviewing prospective host yacht clubs, carefully reviewing their extensive application forms, and performing thorough background checks, we have finally reached a decision. Our complex application scoring process heavily weighted kick-ass sailing, parties that would be illegal in most states, and dedication to this charity cause. One applicant towered above the rest…</p><p class="MsoNormal" style="margin-top: 0px; margin-right: 0px; margin-bottom: 0px; margin-left: 0px; "> </p><p class="MsoNormal" style="margin-top: 0px; margin-right: 0px; margin-bottom: 0px; margin-left: 0px; ">…those wild and crazy folks at the <b>Berkeley Yacht Club will </b>be hosting the 2010 Sarcoma Cup !!! Congratulations BYC !!</p><p class="MsoNormal" style="margin-top: 0px; margin-right: 0px; margin-bottom: 0px; margin-left: 0px; "> </p><p class="MsoNormal" style="margin-top: 0px; margin-right: 0px; margin-bottom: 0px; margin-left: 0px; ">Unfortunately, we are still sworn to secrecy on some of the event’s details. You may have heard rumors about special appearances by some of the SI swimsuit models at this year’s Sarcoma Cup. At this time I can neither confirm or deny these rumors. As soon as we can declassify the rest of the event details we will be making further announcements. Stay tuned.</p><p class="MsoNormal" style="margin-top: 0px; margin-right: 0px; margin-bottom: 0px; margin-left: 0px; "> </p><p class="MsoNormal" style="margin-top: 0px; margin-right: 0px; margin-bottom: 0px; margin-left: 0px; ">So, far the following fleets have committed to the event and have it on their calendar:</p><p class="MsoNormal" style="margin-top: 0px; margin-right: 0px; margin-bottom: 0px; margin-left: 0px; "> </p><p class="MsoNormal" style="margin-top: 0px; margin-right: 0px; margin-bottom: 0px; margin-left: 0px; ">J105</p><p class="MsoNormal" style="margin-top: 0px; margin-right: 0px; margin-bottom: 0px; margin-left: 0px; ">Express 27</p><p class="MsoNormal" style="margin-top: 0px; margin-right: 0px; margin-bottom: 0px; margin-left: 0px; ">Wabbit</p><p class="MsoNormal" style="margin-top: 0px; margin-right: 0px; margin-bottom: 0px; margin-left: 0px; ">Alerion 28</p><p class="MsoNormal" style="margin-top: 0px; margin-right: 0px; margin-bottom: 0px; margin-left: 0px; ">Viper 640</p><p class="MsoNormal" style="margin-top: 0px; margin-right: 0px; margin-bottom: 0px; margin-left: 0px; ">Open 5.70</p><p class="MsoNormal" style="margin-top: 0px; margin-right: 0px; margin-bottom: 0px; margin-left: 0px; ">Santana 22s (Sunday)</p><p class="MsoNormal" style="margin-top: 0px; margin-right: 0px; margin-bottom: 0px; margin-left: 0px; "> </p><p class="MsoNormal" style="margin-top: 0px; margin-right: 0px; margin-bottom: 0px; margin-left: 0px; ">So, if your fleet is not on this list, now’s the time to fix that <span style="font-family: Wingdings; ">J</span>. Do your sailing friends a favor and pass this email on. </p><p class="MsoNormal" style="margin-top: 0px; margin-right: 0px; margin-bottom: 0px; margin-left: 0px; "> </p><p class="MsoNormal" style="margin-top: 0px; margin-right: 0px; margin-bottom: 0px; margin-left: 0px; ">We will also be posting updates at <a href="http://www.sarcomacup.org/" target="_blank" style="color: rgb(0, 101, 204); ">http://www.sarcomacup.org/</a></p><p class="MsoNormal" style="margin-top: 0px; margin-right: 0px; margin-bottom: 0px; margin-left: 0px; "> </p><p class="MsoNormal" style="margin-top: 0px; margin-right: 0px; margin-bottom: 0px; margin-left: 0px; ">Cheers,</p><p class="MsoNormal" style="margin-top: 0px; margin-right: 0px; margin-bottom: 0px; margin-left: 0px; ">Mark Lowry</p><p class="MsoNormal" style="margin-top: 0px; margin-right: 0px; margin-bottom: 0px; margin-left: 0px; ">2010 Sarcoma Cup Regatta Co-chair</p><p class="MsoNormal" style="margin-top: 0px; margin-right: 0px; margin-bottom: 0px; margin-left: 0px; ">Express 27, #68, “Xena”</p><p class="MsoNormal" style="margin-top: 0px; margin-right: 0px; margin-bottom: 0px; margin-left: 0px; ">RYC</p><p class="MsoNormal" style="margin-top: 0px; margin-right: 0px; margin-bottom: 12pt; margin-left: 0px; ">On behalf of your 2010 Sarcoma Cup organizing committee</p></span>Nathalie Criou Racinghttp://www.blogger.com/profile/09548331255173461892noreply@blogger.com0tag:blogger.com,1999:blog-5751879701866172936.post-66678619109399448092010-03-01T22:58:00.000-08:002010-03-01T22:59:31.935-08:00BeatSarcoma 2010 Fun Run - Registration Opens!<span class="Apple-style-span" style="font-family: 'lucida grande', tahoma, verdana, arial, sans-serif; font-size: 11px; color: rgb(51, 51, 51); "><div class="UIIntentionalStory_Header"><h3 class="UIIntentionalStory_Message" ft="{"type":"msg"}" style="font-size: 13px; color: rgb(51, 51, 51); margin-top: 0px; margin-right: 0px; margin-bottom: 0px; margin-left: 0px; padding-top: 0px; padding-right: 0px; padding-bottom: 0px; padding-left: 0px; font-weight: normal; overflow-x: hidden; overflow-y: hidden; "><span class="UIIntentionalStory_Names" ft="{"type":"name"}" style="color: rgb(128, 128, 128); "> </span><span class="UIStory_Message">Registration for the 2010 BeatSarcoma Fun Run/Walk is open!!! We are introducing a 'Fun/Themed/Costumed' category, a 1K and a 'Pet' category!</span></h3><div><br /></div><div>Come join us! </div><div><br /></div><div>- if you are interested in volunteering, email funrun@beatsarcoma.org</div><h3 class="UIIntentionalStory_Message" ft="{"type":"msg"}" style="font-size: 13px; color: rgb(51, 51, 51); margin-top: 0px; margin-right: 0px; margin-bottom: 0px; margin-left: 0px; padding-top: 0px; padding-right: 0px; padding-bottom: 0px; padding-left: 0px; font-weight: normal; overflow-x: hidden; overflow-y: hidden; "><span class="UIStory_Message"><br />Come join us in Golden Gate Park -<a href="http://www.beatsarcoma.org/BeatSarcoma_Fun_Run_2010.html" target="_blank" rel="nofollow" onmousedown="UntrustedLink.bootstrap($(this), "85796bdbb4580828ee7e5622c9593a45", event)" style="cursor: pointer; color: rgb(59, 89, 152); text-decoration: none; "><span>http://www.beatsarcoma.org/BeatSarcoma_F</span><wbr><span class="word_break" style="display: block; float: left; margin-left: -10px; padding-top: 0px; padding-right: 0px; padding-bottom: 0px; padding-left: 0px; "></span>un_Run_2010.html</a></span></h3></div><div class="UIStoryAttachment" ft="{"type":"attach"}" id="" style="margin-top: 6px; overflow-x: hidden; overflow-y: hidden; padding-right: 10px; margin-bottom: 5px; "><div class="UIStoryAttachment_Media UIStoryAttachment_MediaSingle" ft="{"type":"media"}" style="float: left; overflow-x: hidden; overflow-y: hidden; padding-right: 10px; "><div class="UIMediaItem UIMediaItem_UnknownWidth"><a href="http://www.facebook.com/l.php?u=http%253A%252F%252Fwww.beatsarcoma.org%252FBeatSarcoma_Fun_Run_2010.html&h=85796bdbb4580828ee7e5622c9593a45&ref=mf" target="_blank" onclick="ft("4:9:17:87644801313:::0:::241526929955:::5:1:28:0");" style="cursor: pointer; color: rgb(59, 89, 152); text-decoration: none; "><div class="UIMediaItem_Wrapper" style="overflow-x: hidden; overflow-y: hidden; "><img src="http://external.ak.fbcdn.net/safe_image.php?d=139bc244f1169be9667db0d53e6aa840&w=90&h=90&url=http%3A%2F%2Fwww.beatsarcoma.org%2Fimages%2Fcindi_did_conquer_fun_run_2009_xm34.jpg" style="border-top-width: 0px; border-right-width: 0px; border-bottom-width: 0px; border-left-width: 0px; border-style: initial; border-color: initial; display: block; max-width: 90px; max-height: 90px; " /></div></a></div></div><div class="UIStoryAttachment_Info" style="display: table; "><div class="UIStoryAttachment_Title" style="font-weight: bold; padding-top: 3px; "><a href="http://www.facebook.com/l.php?u=http%253A%252F%252Fwww.beatsarcoma.org%252FBeatSarcoma_Fun_Run_2010.html&h=85796bdbb4580828ee7e5622c9593a45&ref=mf" target="_blank" onclick="ft("4:9:17:87644801313:::0:::241526929955:::5:1:28:0");" style="cursor: pointer; color: rgb(59, 89, 152); text-decoration: none; ">BeatSarcoma Fun Run 2010</a></div><div class="UIStoryAttachment_Caption" style="color: rgb(128, 128, 128); padding-top: 3px; ">www.beatsarcoma.org</div><div class="UIStoryAttachment_Copy" style="color: rgb(128, 128, 128); padding-top: 3px; ">Fun Run to raise funds to fight sarcoma. The sarcoma is a cancer that primarily affects children and young adults.</div></div></div></span>Nathalie Criou Racinghttp://www.blogger.com/profile/09548331255173461892noreply@blogger.com1tag:blogger.com,1999:blog-5751879701866172936.post-24720392118272178062010-02-11T23:48:00.000-08:002010-02-11T23:49:59.986-08:00Sarcoma International Awareness Week - bring your ideas for a BeatSarcoma Team!<span class="Apple-style-span" style="font-family: arial, sans-serif; font-size: 13px; border-collapse: collapse; "><p><span style="font-size: 11pt; font-family: 'Times New Roman', serif; ">The International Sarcoma Awareness week (ISAW) is also known as the Team Sarcoma Initiative (TSI). It is an internationally coordinated set of events to raise awareness of sarcoma and raise funds to support sarcoma research, clinical trials, and patient and family services. This annual effort consists of a wide variety of events that are held worldwide during the same week. Over 16,800 people participating in 2009, doubling last year’s participation and far surpassing our goal of 10,000 participants. 30 medical centers and 25 sarcoma advocacy groups were among the groups that hosted the 90 events that were held globally. Over $450,000 was raised by teams to support various cancer centers and advocacy groups.</span></p><p><span style="font-size: 11pt; font-family: 'Times New Roman', serif; "> </span></p><p><span style="font-size: 11pt; font-family: 'Times New Roman', serif; ">The mantra of the Initiative is “Sarcoma Knows No Borders.” We use this phrase because sarcomas can occur anywhere in the body and they don’t discriminate based on age, gender, race or nationality. People from all over the globe participate in Team Sarcoma Events ― young and old, women and men, from countries across Europe, through Asia and Pacific regions, and in North, Central and South America.</span></p><p><span style="font-size: 11pt; font-family: 'Times New Roman', serif; "> </span></p><p><span style="font-size: 11pt; font-family: 'Times New Roman', serif; ">Committed and caring people around the world have made the Team Sarcoma Initiative more successful each year. Our goal in 2010 is to have 20,000 people involved in a life-changing Initiative. Families are invited to plan events in their communities to increase awareness or raise funds for sarcoma research. Advocacy groups and cancer centers are invited to plan events that will strengthen their ties with patients and increase their reach. Whether enjoying a backyard barbeque, an educational seminar, or a thrilling race: Together, we are making a difference!</span></p><p><span style="font-size: 11pt; font-family: 'Times New Roman', serif; "> Help BeatSarcoma be a part of this - email us your idea at info at beatsarcoma dot org, or through comments on the blog/messages on our Facebook page: <a href="http://www.facebook.com/pages/BeatSarcoma/87644801313?ref=search&sid=1091717098.708275870..1">http://www.facebook.com/pages/BeatSarcoma/87644801313?ref=search&sid=1091717098.708275870..1</a></span></p></span>Nathalie Criou Racinghttp://www.blogger.com/profile/09548331255173461892noreply@blogger.com0tag:blogger.com,1999:blog-5751879701866172936.post-44572630029868216272010-02-11T23:22:00.001-08:002010-02-11T23:22:56.760-08:00Sarcoma Educational Conference<span class="Apple-style-span" style="font-family: arial, sans-serif; font-size: 13px; border-collapse: collapse; "><b><span style="font-family: 'Times New Roman', serif; ">Sarcoma Educational Conference </span></b></span><div><span class="Apple-style-span" style="font-family:'Times New Roman', serif;font-size:100%;"><span class="Apple-style-span" style="border-collapse: collapse; font-size: 13px;"><b><br /></b></span></span></div><div><span class="Apple-style-span" style="font-family: arial, sans-serif; font-size: 13px; border-collapse: collapse; "><b><span style="font-family: 'Times New Roman', serif; "></span></b><span style="font-family: 'Times New Roman', serif; ">The SFA’s 5<sup>th</sup> annual Educational Conference,<b><i> Ask the Experts: Advances in Sarcoma Treatment and Research</i></b><i>,</i> will be held on Sunday, April 25, 2010 at the Park Lane Helmsley in New York City from 11:00 AM to 3:30 PM. One of the best aspects of the conference is that there is an hour question and answer session from the audience. This year we expect the conference to reach new heights and hope you will join us. Confirmed speakers are Dr. George Demetri from Dana-Farber Cancer Center speaking on What is Targeted Therapy and Where are we Going, Dr. Shreyaskumar Patel from M.D. Anderson speaking on Leiomyosarcoma, Dr. Paul Meyers from Memorial Sloan-Kettering speaking on Osteosarcoma, Dr. Jeffery Toretsky from Lombardi Comprehensive Cancer Center at Georgetown University speaking on Ewing’s Sarcoma, Dr. </span><span lang="EN-GB" style="font-family: 'Times New Roman', serif; ">Jean Yves Blay, President of the European Organisation for Research and Treatment of Cancer will be speaking about the European Sarcoma Drug Approval, and Dr. John Brooks from the University of Pennsylvania will discuss advances in Sarcoma Pathology. Tickets and hotel information is available on <a href="http://www.curesarcoma.org/" target="_blank" style="color: rgb(0, 101, 204); ">www.curesarcoma.org</a></span></span></div>Nathalie Criou Racinghttp://www.blogger.com/profile/09548331255173461892noreply@blogger.com0tag:blogger.com,1999:blog-5751879701866172936.post-27838620708534894932010-01-28T18:01:00.000-08:002010-01-28T18:03:52.192-08:00Fun Run 2010 - Keep the date!Hello fellow racers toward a cure!<div><br /></div><div>The BeatSarcoma Fun Run 2010 is ON! It will be held on April 25, in Golden Gate Park, in San Francisco. There will be a 1K, a 5K and a 10K course.</div><div><br /></div><div>More details to follow soon! Any question, please email funrun at beatsarcoma dot org.</div><div><br /></div><div>If you want to keep memories of last year's run, you can get the BeatSarcoma Fun Run calendar by clicking <a href="http://www.cafepress.com/BeatSarcomaPlus.425093500">here</a>! It's good training :-)</div><div><br /></div><div>We look forward to seeing you all there!</div><div><br /></div>Nathalie Criou Racinghttp://www.blogger.com/profile/09548331255173461892noreply@blogger.com0